A Parent's Toolkit

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Jo is the mother of Bayley, a kid with Juvenile Idiopathic Arthritis, a very painful condition which has a huge impact on his and his family's daily life.

 

 There is a blog site worth exploring on this topic at

http://blog.oup.com/2013/12/why-is-pain-in-children-ignored/

Here is a sample of that blog by Patrick McGrath who says:

"It is hard to believe that in the mid 1980s it was standard care, even in many academic health centres, for infants to have open heart surgery with no anaesthesia but just a drug to keep the infant still.

This practice was blown out of the water by a courageous mother, Jill Lawson, who against great resistance, pushed to publicize the lack of anaesthesia during open heart surgery that her son, Jeffrey Lawson, had undergone at DC children’s hospital. After dozens of letters and requests for a review of the policy and many condescending rebuffs, the Washington Post published her story. All hell broke loose. There were dozens of news stories because every mother knew that babies feel pain. How could health professionals be so stupid?

Careful research by Dr. Kanwaljeet J. S. Anand on the same procedure for his Rhodes scholarship at Oxford had demonstrated the under medication of children following surgery and the massive stress response that infants experience when undergoing surgery without anesthesia. Anand was feted and given a prize by the British Paediatric Society. But his research was also attacked by a group of British MPs because they claimed he was experimentally torturing babies"

 pmn

 

 

 

 

y Patrick McGrath


It is hard to believe that in the mid 1980s it was standard care, even in many academic health centres, for infants to have open heart surgery with no anaesthesia but just a drug to keep the infant still.

This practice was blown out of the water by a courageous mother, Jill Lawson, who against great resistance, pushed to publicize the lack of anaesthesia during open heart surgery that her son, Jeffrey Lawson, had undergone at DC children’s hospital. After dozens of letters and requests for a review of the policy and many condescending rebuffs, the Washington Post published her story. All hell broke loose. There were dozens of news stories because every mother knew that babies feel pain. How could health professionals be so stupid?

Careful research by Dr. Kanwaljeet J. S. Anand on the same procedure for his Rhodes scholarship at Oxford had demonstrated the under medication of children following surgery and the massive stress response that infants experience when undergoing surgery without anesthesia. Anand was feted and given a prize by the British Paediatric Society. But his research was also attacked by a group of British MPs because they claimed he was experimentally torturing babies.

- See more at: http://blog.oup.com/2013/12/why-is-pain-in-children-ignored/#sthash.aqf3DdaP.dpuf