Any experience with Neuropathy ?

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1 year 4 months ago #27930 by SarahCole
Any experience with Neuropathy ? was created by SarahCole
Hi everyone,

This is Wafa .im new visitor here in Australia mainly Melbourne .

Im 27 years patient with neuropathy with unknown cause. Because all results are fine.it started last october 2016..

I feel numbness and tingling and taking many drugs .

Is there any support group here ?

Is there any clinics or doctors do you advise me ?

Or even any one experience with neuropathy to share ?


Any information will be valuable .

Cheers,
Wafa

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1 week 1 hour ago #29464 by Maddy
Replied by Maddy on topic Any experience with Neuropathy ?
Hi Sarah,

It was somewhat difficult to answer your questions due to so very little information. I have a very rare disease and not only that it’s a very rare subtype of this rare disease. I believe if you contact Health Direct, 13 HEALTH or your GP they will be able to help direct toward an appropriate support group. Last year I developed an incredibly rare and extremely painful disease which I am dying from. I have been left a paraplegic and am in a wheelchair. I need nurses around the clock as I cannot use my hands nor arms due to the neuropathy. My pain goes from pins and needles, to feeling like I have an electrical storm in my body, to musculoskeletal pains from spasming, wasting away, burning pains. A neurologist told me this is considered one of the most painful ways to die. Mine is called ASAM GBS/CIDP. Please send more clarification so as I may help.

Kind regards

Maddy

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