pucksapest wrote: Hi ive just read a bit we all sound the same we all fought the goodfight only to find some so called specialist comes along and starts playing with our meds It doesnt matter that you have been stable for years that you know more than they do about your body that you do all the right things .you try all the new drugs you exercise or work or parent or study basically having a life which is what us poor bastards fight for every day
I can tell you right now the minute you get that letter to see the pain team we all freak we all know whats ahead I recieved my letter the other day and burst into tears .I really would like to know what is in store for me at Fiona Stanely Hospital pain team bearing in mind that the other 2 major hospitals in WA were not good has anyone had any good reviews at all or is it going to be exactly the same ,treated like a junkie and put on the same crappy useless meds with the same shocking side effects. at least if your on opioids you know what to expect
Welcome to the CPA Forum!
There are some horror stories out there, but there are also many good ones too. I think the best thing for you to do would be to educate yourself and arm yourself with as much information as possible.
One main point in all this is that you have to understand the most important thing with attending a pain clinic of any kind, is your own attitude and outlook. You must be proactive in your ongoing care with the view of effective self-management. Sometimes this also means taking control over your health matters and being the driver of your future.
I think I might be able to give you some information that maybe of some assistance, being from WA myself I can't post clinical information here, so if you would like to email me off-list then I pass on what I have experienced and maybe offer you some alternatives.
I wish the ring (this Chronic Pain) had never come to me. I wish none of this had happened. (Frodo Baggins)
So do all who live to see such times. But that is not for them to decide. All we have to decide, is what to do with the time that is given to us. (Gandalf the Grey)