I joined today and am in desperate need of some advice.
I am hoping to get in contact with anyone that has dealt with SI joint issues.
I have been dealing with this pain going on 2 years. The last year been the worst.
I am 33F from Sydney.
I have no other injuries to my back. I remember first feeling like I had hurt my back at the gym, as I was doing some F45 classes. I thought I had pulled my back out. Didn’t think much of it until the weeks turned into months, months into years.
I was properly diagnosed about 6 months ago, after my doctor sent me for a SPECT bone scan.
It says I have bilaterial si joint incompetence, worse on the right side.
I have been seeing a physio for the last few months, and have got absolutely nowhere. Do not feel any better at all.
My ortho decided that physio alone was not obviously helping so she did one round of PRP into my right joint, 7 weeks ago.
I understand prp causes inflammation and you can get a flare of pain for the first few week. As each week goes by I’ve been feeling worse and worse.
Since prp ive has an increase in pelvic/groin/hip pain.
I thought by 7 weeks the pain would have subsided or at the very least not made it worse!
I am beside myself. It hurts to stand for short periods it hurts to walk. I have to sit down to make dinner.
It has completely turned my life upside down.
I don’t socialise, I’ve had to start working from home when I can. It has deeply affected my mental wellbeing.
If anyone have any advice they could share with me, I would be so grateful to hear from anyone that has gone through this. Has anyone has any experience with prp?
I have changed physio and tomorrow is my first session with the new physio. Apparently she specialises in lumbar pelvic issues. Fingers crossed.
The thought of having to go through another year of living like this brings tears to my eyes. I am broken.
I can't speak on the specific SI joint issues, but certainly the emotional side of things, as well as having to deal with chronic pain is something that many people in this forum have experienced.
Hopefully someone can comment specifically about your SI joint issues.
Like you, I have issues with standing for long periods of time, as well as walking (I do better at walking than standing, but I'm still limited).
As you know, this limits the opportunity to socialise, which causes a number of other emotional issues - isolation, frustration which all lead to depression and anxiety.
Dealing with the pain is one thing, but having to deal with the emotional and mental side of things is a completely different kettle of fish.
As much as you can, try and maintain social contact with friends and family. It's likely that they won't understand what you are going through, and at times, they will likely drive you insane with questions like "How are you feeling today?"
It's an innocent question and comes from a good place, but after a while, it starts to drive people with chronic pain mad.
There's a letter that Johnno (one of the forum moderators) came across a while ago, and shared on this forum.
If you can, speak to your GP about how you are feeling. They can put you in contact with a counselor or psychologist, and they may be able to give you some helpful advice on how to deal with the emotional/mental side of dealing with chronic pain.
Also, one of the best pieces of advice that I've had over the past few years came from an occupational therapist.
They said that if it's hard to do certain tasks (like vacuuming or preparing dinner), try and break them up into smaller, but more manageable tasks.
For me, vacuuming was almost impossible. So now, I leave the vacuum in an easy to reach place (but still out of the way), and will vacuum smaller areas over a day or two.
A similar thing with dinner. Instead of preparing everything at once, do a little throughout the day.
This has a couple of benefits:
1. Not having to do something to the point of where you are in so much pain you can't continue.
2. Keeping relatively active throughout the day.
I also ended up swapping out the vacuum cleaner for a lighter one, which was easier to carry/move, but also less leaning forward.
Hopefully the new physio has been helpful as well. Some can be better than others.