Introduce Youself Here!

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2 months 1 week ago #30073 by Canjam
Replied by Canjam on topic Introduce Youself Here!
Hi Optimistprime,

You’ve introduced yourself on the medicinal cannabis intro thread, there’s another normal intro thread and also a CRPS thread which I’m sure Peter and/or Jonno could link for you.

Really sorry to hear what you are currently going through. We have some very similar issues. I also have a CRPS diagnosis which only came about after having minor surgery On my hand and elbow. I honestly feel your pain and figuring out what the best way to go in your treatment is.

There are so many treatment options but no one is the right fit for all. I’ve tried the meds, books, meditation, hydro therapy and lastly medicinal cannabis. The only thing working for me right now is medicinal cannabis. It’s doesn’t completely stop the pain but the sharpe stabbing nerve shooting pains are a lot less and I feel I’m functioning better plus getting sleep finally. I also have a ketamine topical cream that works well at times too.

Go check out the CRPS thread, there are some really great people in there that share their experiences.

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2 months 1 week ago #30074 by Peter
Replied by Peter on topic Introduce Youself Here!
Hi optimistprime.

Love the username! Welcome to the CPA Forum!

So sorry to hear about the CRPS. I seriously empathise with you, because although I don't suffer from it, I do know others who do and it is a particularly nasty form of chronic pain. So know that you will be validated and not judged here my friend, because virtually all of us, including the moderators, suffer from chronic pain.

Just a word of warning. Please don't post anymore information on your Workcover case/issue. What you have said so far is okay. We all know the problems with this govt dept and they are many. However, they do have investigators who troll the internet and forums, looking for anyone posting on them and then they investigate them. We have in the past had one person who almost lost their workcover case because she posted here on this forum.

This forum is fully public and any Google search will bring up key words and take people directly to a post. So be guarded and careful.

Also, one thing I have found with many people who are in our position, the one thing you have to learn to do in at least this part of your life, is put yourself first. Sorry if this sounds a little like I'm crossing the line, but for your benefit and the benefit of readers, it must be said.

Do whatever you have to do to improve your life, FOR YOU and no one else. Why am I saying this? Because if you do it for others, you will set yourself up for failure. If you set the bar that high, if you fail, then it could cause all manner of problems, not to mention depression and then issues with your relationship.

You need to set achievable goals for you and only you, so that once you get there, pat yourself on the back, then move on to the next goal. Remember, you suffer from a very painful and nasty condition and although you can manage it, it isn't going to be an easy ride, so please for your own sake and for the sake of your family, just take one step at a time and try to improve your lot, just for you.

I say, 'just for you,' because as your life improves and your outlook improves, your interactions with others will also be lifted, thus the Missus will also get the benefit. But for you to keep it real, everyone else must take second place as you focus on moving forward to improve your life.

Okay, enough of that.

Have you been to a Multidisciplinary Pain Clinic yet?
If not, go to your GP and get a referral to one, but not just any. Make sure you get sent to one that has a specialist in it who is treating other people with CRPS. Unfortunately, there are not enough clinicians around treating this accused condition. So you will have to do some shopping around.

Also try posting in this thread in our forum: chronicpainaustralia.org.au/forum/my-ill...and-my-virtual-world
There are others who suffer from this and they may be able to help you find better clinical help. Go to the last page and post a reply. All those who have posted into it, will get a notification of your post and hopefully someone will answer.

Take care and keep talking, but please put realistic achievements before you. You must come first. It isn't being selfish. Everyone around you will benefit anyway, if you focus on yourself.


Peter

I wish the ring (this Chronic Pain) had never come to me. I wish none of this had happened. (Frodo Baggins)

So do all who live to see such times. But that is not for them to decide. All we have to decide, is what to do with the time that is given to us. (Gandalf the Grey)

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3 weeks 18 hours ago #30127 by Robin233
Replied by Robin233 on topic Introduce Youself Here!
Hello, I found the site over a week ago and have just plucked up the courage to join, I have been browsing the forum for a few weeks so decided it was time to sign up and say hello.

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3 weeks 17 hours ago - 3 weeks 17 hours ago #30129 by Peter
Replied by Peter on topic Introduce Youself Here!
Hi Robin,

Welcome to the CPA Forum!
So good that you decided to finally join up and post.

You will have noticed that we don't have a particularly busy forum, but we have a forum full of very helpful information. You can be weeks reading it.

Please post us your story if you feel up to it. You can do it here or create a thread of your own. If you don't feel up to that yet, then that is okay too.

Just keep reading and talking. You are among people who know what you are going through and fully understand your suffering, even though we have never met.

Take care!


Peter

I wish the ring (this Chronic Pain) had never come to me. I wish none of this had happened. (Frodo Baggins)

So do all who live to see such times. But that is not for them to decide. All we have to decide, is what to do with the time that is given to us. (Gandalf the Grey)
Last edit: 3 weeks 17 hours ago by Peter.

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