Hi I have spinal stenosis which has gradually worsened over the years in the last 6 months pain has been severe and numerous visits to local Dr haven't helped as has just constantly prescribed pain medication did do an ultrasound at my request and bursitis of hip found steroid shots followed with no relief so I payed for physio and chiropractor myself and asked Dr for referral to a Hospital one hospital said they felt it could wait but thankfully Melbourne hospital that is over 700k's away has agreed to see me last week after 6 months of asking Dr finally sent me for CT scan which showed advanced spondylosis disc space narrowing and compression of the L4 nerve root yesterday I was scheduled to have a steroid shot in spine but after reviewing my scans specialist felt it was not a good idea and I would be better off asking specialists advice in Melbourne as I was hoping steroid would relieve pain so I can fly not sure what to do now I currently take panadeine forte at night and or endep daily panadol osteo and mobic I also use icepacks and heat other drugs I have tried have produced negative side effects does anyone have any other ideas how to relieve pain so I can fly and cope with airport luggage etc and how to manage chronic nerve pain thankyou
I have been living with nerve pain for 10 years, due to permanment damage caused spinal injury, medications are not an option due to intolerances, after years of trial and error playing with meds, which were just as bad as the pain because of adverse side effects, I was offered to go for a spinal stimulator, this device has relieved a little of the pain, not all.
Having nerve damage is a real bugger, as pain is just not restricted to the nerve damage site, it is the refered pain that is hard to control as the central nervious system goes into overdrive, as I said my nerve damage is in my lower back, yet legs and feet suffer pain and a miriad of other problems, like no feeling, burning, electrical pulsing pain, coldness, skin tenderness, edema and many more wierd sensations, the problem is how do you treat these, it's a problem a lot with nerve face, there are no easy fixes or answers
The best thing would to be to learn coping strategies through a pain clinic management course, all you need is a referal from your GP to a pain clinic, these are private and publically available, but with private do your research, any course that offers either the ADAPT or STEPS program are the ones you seek, some only seek you to get off all medication, while the two courses I mentioned seek to find a balance between medication and self control to manage pain, ultimately we control how much pain we inflict on ourselves by our activities both at work and freetime, the trick is to find a balance of still being productive without increasing pain, and that is what these courses centre around.
The following user(s) said Thank You: Anne Aherran
Thank-you have just been told that an operation may relieve the pain what I was once scared of I will probably take if offered I admire anyone who can live with nerve pain constantly it has worn me out and I feel like I can not get anything done and seem to be housebound all the time except for a walk everyday that again sets of the pain all the symptoms you described I have had the feeling of hot pins and needles I find the most painful and scary the chiropractor with ultrasound theraphy at least eases the symptoms for a few hours there are no pain clinics near here so when I am at the Royal Melbourne I will ask thanks again for your reply
Yes I was told that also, they also said I would be back at work 4 weeks after op, well 1 year after first op I had to have a second, neither of which decreased pain, in fact it got worse, caused bony growths to developed, and scar tissue to wrap around the nerves and area of the operations, which ruled out any further opetations, not that I would choose to go down that path, if I had a crystal ball, I would never had the operation in the first place, it has caused more complications and pain.
Ever since the first op I have not returned to work, that decision was made for me when they put me on a disability pension, it took a long time to adjust to not working and supporting my family, with feelings of guilt and being a failure, deep depression took hold, I became suicidle, pain also increased the worse the depression got.
It was through the help of a pain clinic that help me get through, they don't only deal with the physical side of chronic pain but also the mental side, by having psychologists and sphyciatrists on hand who only treat patients with chronic pain, that's why I mentioned a pain clinic to seek out, it is what they specialise in, where as GPs have to cover all ailments, and don't fully understand how much chronic pain disrupts ones life, not all, there are some really caring ones out there, but they are far and few of them, it's a common complaint as can be seen in our forum.
The following user(s) said Thank You: Anne Aherran
Well I went to Specialist and rheumatologist who ordered an MRI I have a number of problems I disc has disintegrated completely and have severe left forminal stenosis after urgent consult with neurosurgeon I have been told to have an epidural steroid injection to see if this relieves some of the pressure of nerves before they will even consider surgery as they feel if doesn't relieve even for a day that is not where the problem is I am also to have a full bone scan I am very grateful that the hospital in Melbourne achieved more in 3 hours than the local Drs in 6 months but still not sure what the outcome will be till May
Hi all who have answered here. I am no great shakes on answers for relieving this pain. When I say Pain I mean what you mean: agonising, excruciating, mind bending pain, that I often have to mask in public, but it's always there, except those lulls when it mercifully is covered by pain killers. Back to it: My experience is the same: I walk a little daily, then I pay for it with a bout of pain. When I use a stationary cycle however, it hurts for a few pushes, but then eases, and I can cycle for over 20 minutes without pain. I only stop, not due to any pain, but due to being puffed. I am building it up. So why walking hurts, but cycle doesn't, I have no idea. But I'm thankful something is ok.
Second, I use a TENS unit . It works somewhat, I don't know why. Perhaps the buzzing gently takes my mind off the pain.
Third, I am having surgery in three days. Laminectomy and foramenotomy on L3/4, and discectomy and rhyzolisis on L4/5.
There are risks and I've been made aware. BUT I look at it this way: if I don't have it I will be in this pain forever, except it will get worse.
If I do have it I have a chance that it will work. For me there is no choice but to have the surgery. I'll let the forum know how it goes. It won't be known for some time. Sometimes it lasts for a few months, or years, sometimes pain is worse. I have to have faith in my surgeon.
It could have been different and I could still be waiting for nothing, in pain. 6 months ago when I had a fall that exacerbated my spinal condition, : I demanded an MRI from one dr and he said it could only be ordered by a specialist or I'd have to pay for it. But because I persisted, he sent me to a specialist. Then I had to demand of that guy that I needed an MRI. He didn't agree but I persisted. Turns out I was right. Now I have a good neurosurgeon. But you have sometimes to be assertive. Especially if you are an elderly female. One more thing. I take hubby along to appointments. MAle doctors listen if a husband is in the room. Disgraceful but true. In my experience.