Fibromyalgia

  • ElaineKay
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2 years 1 week ago #27705 by ElaineKay
Fibromyalgia was created by ElaineKay
I have struggled with pain and associated problems for over 30 years. Fifteen years ago I was eventually diagnosed with fibromyalgia. My specialist got me reasonable with medication and strength exercises. However, over the last two years I have gone down hill. I have completely changed all medications. Pain medications have done nothing and am currently off all of them and no real change. At present I find it hard to do basic things for myself and my home. What time I get to do things are taken up by outside influences such as community volunteering. It is hard as no-one really understands. I help others all the time, but no-one helps me.

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2 years 1 week ago #27709 by Peter
Replied by Peter on topic Fibromyalgia
Hi Flits,

Welcome to the CPA Forum!

It is good to have you here posting and talking to us. I can commiserate with you so much. I have had a chronic pain condition and much of these symptoms for over 5 decades and I was diagnosed with fibro in 2001. Bloody pain in the neck I tell you!

We have a few members with this accursed condition, so please keep posting. Have a look in the General Discussions category too, to see if there are any other topics you may wish to comment in. Either way, read as much as you can so you can learn how some of us learn to live with our problems.

Although we have Fibro, our pain condition is virtually the same as most others. So we can all relate to each other because of this one link.

Take care!


Peter

I wish the ring (this Chronic Pain) had never come to me. I wish none of this had happened. (Frodo Baggins)

So do all who live to see such times. But that is not for them to decide. All we have to decide, is what to do with the time that is given to us. (Gandalf the Grey)

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2 years 1 week ago #27715 by ElaineKay
Replied by ElaineKay on topic Fibromyalgia
My new doctor of 12 months had tried me on many pain killers, even though I told him they have no effect except nerve pain killers. I find lyrica helps. He had me on other strong pain medications. I went through small amounts then up to high amounts of many types. The last was Palexia. With all of them I had major pain in the middle of my lower spine. When I started any activity; like washing dishes, preparing a meal, hanging washing, etc, within 5 minutes the pain was so extreme and I could hardly walk or move. I stopped them cold turkey and had no withdrawal symptoms. Within days I was doing all of these things with pain, but completely manageable. Why don't doctors listen? You would think that after 30 years, that I know myself and my body.

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7 months 1 week ago #29327 by TomC
Replied by TomC on topic Fibromyalgia
Hi Elaine
Look up the Gerson Therapy, it may be what you have to do to get your health back!

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4 months 3 weeks ago #29594 by Johnno
Replied by Johnno on topic Fibromyalgia
Careful

as long as I wake up alive I'm happy
Because it could be worse

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  • I.F. Kenneth Hurt
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4 months 2 weeks ago #29603 by I.F. Kenneth Hurt
Replied by I.F. Kenneth Hurt on topic Fibromyalgia
Hi ElaineKay, I hope your experience with Palexia wasn't anywhere near as horrific (an understatement) as what ours was. I also agree with your second last sentence.

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