In 2009, i herniated my L5/s1 lifting the pram out of the car ,resulting in two surgeries disectomy then fusion, since then my back is great!
BUT, 3 years ago I was working commercial cleaning & my neck was sore, so I started Physio, after 3mths with no change, my doctor sent me for a MRI , resulting in two small disc bulges in my C3/4,C4/5 & the diagnosis of cervical disc disease in all 7 levels, & my doctor telling me this cannot be fixed with surgery like my back!At 39 with 3 kids & a business this is not what I wanted to hear, I kept working resulting in 3 broad based disc bulges & numbness in my hand & arms. I kept up with Physio, quit work & saw a great neuro surgeon who also told me surgery wasn't an option & referred me to a pain specialist, I tried steroids injections & a procedure called radiodrgenervation which showed the pain specialist the burning of my nerves was not an option & I may have to have a spinal simulator implanted , he told me no work , put me on higher pain killers & told me to come back in 6mths, since then my neck has ceased up with pain , muscle spasms & nerve shocks at least 8 time resulting in days of not being able to drive, move my head & now the medication doesn't even help, Physio doesn't help, I have a traction device st home my Physio got me,I'm tired exhausted my home life & marriage is suffering & I cannot control the pain, time for a review I think, & thanks for listening, just having a rough time ATM
If in doubt get a second or even a third opinion the first may be right but you just don’t know .
My lumbar is shot and I have a ACDF at C5/6 which so far has been successful so fingers crossed this was fixed by the third nuerosurgeon ,the first put in cortisone, the second said he could do surgery it’s up to me the third a lady said oh shit and sent me for neck flex ion x-rays ,CT with radiation full spine and MRI full spine she had me in hospital with in a week as the spinal cord could have severed.
I’ve had the nerves burnt and have have some success and reduction in my pain levels not as much as I would like but it’s something .
I am in Brisbane if you are up here I could pm you their names .
as long as I wake up alive I'm happy
Because it could be worse
Looks like we are kindred spirits in pain. Damn neck. Worst place to get pain like this, because the head aches are constant and massive. I have degen disc disease, scoliosis and arthritis in my neck. I have a pinched nerve root at L/H C4, which sends huge pain down my left shoulder, arm, chest and back to my left shoulder blade. On top of that, I get bad pain from that shoulder due to an old injury. So I constantly have headaches and they regularly turn into migraine type head aches.
I also have fused L5/S1 joint. But it was done naturally and not via operation. This was the advice of a really good neurosurgeon back in the 1990s and it was the best advice I ever received. But it is working its way up my spine.
My pain specialist who is now the Chair of the School of Pain at the University of Notre Dame in Fremantle WA, told me after I said my GP sent me to have a cortisone injection, to never let anyone touch it again, because it is too high up and too dangerous. He gasped when I told him and he said the risk of infection into the spinal column is too high and because it is close to the brain it is considered a no go area now.
He told me to ask my GP if they will do 'trigger point injections,' which I did and I get them done every 3 to 6 months. These are injections into the knots of muscle that are reacting to the spinal/nerve problems. It doesn't take away the pain hardly at all, but it does help with the gripping painful spasms that lock your neck up.
The other thing that has helped me is joining the old farts exercise class at the local gym. Now, I know you can do these exercises and be shown them by a physio, but since I have been doing the many 'movement type exercises' at the gym, my neck has improved somewhat and I suffer less spasming and a tiny reduction in movement restriction and pain. Remember, these are designed for people who are elderly and suffer chronic illnesses. Just the 'specific' but gentle movement exercises have done me the world of good. I have just recently stopped taking Lyrica, which was used for neuropathic pain and this is mostly due to the exercises.
It won't take away the pain. Nothing can fix this. I am stuck with it till I kick the bucket. So the only thing I can do is exercise, take medication to help, go to the physio when I am desperate, but most of all I have learnt to live with it. As soon as my stress levels go up, my neck screams at me and my brain goes spastic with all the bloody pain. Then I feel like I want to throw up and have to go to bed. When I get migraines, I go to bed with an ice pack on my neck and this is the best treatment of all. It resets everything and I have a good sleep. The next day the cycle starts again, but at reduced pain levels.
I don't know what is the answer for you. You have my sympathy and understanding. And I know just how bad it hurts.
I would listen to all the docs who are telling you surgery is not an option. Very dangerous from what I know.
I hope that some of this is helpful to you. If not, just know that we are all here for you and we talk your language.
I wish the ring (this Chronic Pain) had never come to me. I wish none of this had happened. (Frodo Baggins)
So do all who live to see such times. But that is not for them to decide. All we have to decide, is what to do with the time that is given to us. (Gandalf the Grey)