Well, I rang the lovely lady at the Gold Coast. There is absolutely nothing on the north of Brisbane that she knows of.
It's beyond all logic for me that a major city has such a gaping hole in the care, rehab and management of CP sufferers that reside in it's major growth and development areas.
I've contacted a clinic in Noosa. Their programme is usually 2 weeks Mon-Frid. That's just a bit too intense for me I think. The man I spoke with said I may be better doing a few days a week over 4-6 weeks instead.
It's all about distance and travel for me. I'd need to stay with my mum!!!
Di country people are always being left out because of distance and that is a real shame, these courses are proven to help people with chronic pain, mine was run over 9 weeks and only one session a week of 3 hrs, I can see how this poses a big problem when distance is involved and it is not just the cost, there is the big thing that prevents us in the first place pain.
Do you have a rail service that runs close to and your mother if so it may only mean staying at your mothers one or 2 nights every week until the course is finished rather than staying with her the whole time, last thing you want is to tread on each others toes after just getting back to talking.
That program does look good. I would say it would be worthwhile if you can overcome the distance problem. However, if staying with your Mum is going to cause a lot of stress, then that may mean you won't get the full benefit from the program.
Not every day is a good day, but there is good in every day.
"“It’s delightful when your imaginations come true, isn’t it?” ― L.M. Montgomery, Anne of Green Gables
Thanks again Mary for all the great information you've put up on the forum. ♥
Yes, I agree the Noosa course looks good but I would much prefer to be in my own home each night if possible.
I don't think staying with up in Noosa for any extended period is an option I'd be wise to consider at this early stage of the peace!
I rang the Royal Brisbane Hospital. They have a system where you send in your referral, they assess it and place you in the waiting list according to their determination of your urgency. Although the lass I spoke with wouldn't commit to any time frame, I was told by another person that the RBH waiting list is over 18 months.
The RBH is the closest to me which is 35km away into Brisbane City.
I'll at least get the referral in and be in the system I think is my best option until I can find a better solution or closer clinic.