Info on pain Clinics?

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1 year 10 months ago #28649 by WAP
Info on pain Clinics? was created by WAP
I have an appointment at a pain clinic next week and I am wondering exactly what they do for you there -- I have extreme back pain from the thoracic region right through to the Coxis area, due to Osteoporois/Athritis and Stenois, and the pain is unbearable unless I am sitting or lying -- even lying is giving me much discomfort in the Thoratic area now and I am unable to lie on either side beccause of painful thighs, and I can not cope with being on my feet for any more than about 5 mins I used to be able to manage an hour a few weeks ago but it is getting worse by the day -- I am on Norspan and also have been given Endone but am reluctant to take the 3 a day -- and have been only taking when I have to be on my feet - -( when I have to go to the Dr or do a little shopping) which was about 1 a week -- and so get nothing done in the house as I have to do a bit for 5 mins then sit and so on it goes -- last week I took one Endone a day for 4 days and ended up with hives so bad I couldn't sleep for itching.
The pain started in 1972 and has just got worse over the years and as I have got older.
I am interested to know just what I may expect and/or what they are likely to do at the pain clinic or is it just another wasted day.

Thanks for reading

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1 year 10 months ago #28650 by Peter
Replied by Peter on topic Info on pain Clinics?
HI WAP,

It all depends on what kind of pain clinic it is. If it is a multidisciplinary pain clinic, then you'll see a pain specialist a physio and a clinical psych all of whom have been educated and trained in teaching CP sufferers how to self manage their pain condition.

The main aim with these clinics is to get you mobile again within the scope or range of your disability and if possible, reduce your drug intake. Most of us have been over prescribed drugs/medication anyway and the reason for this is because GPs and stand alone pain specialists who have not been properly trained in dealing with chronic pain, find that all they know is to prescribe drugs. This is okay for first aid treatment of acute pain, plus the maintenance of chronic pain in low doses, but it is not a good thing long term. Believe me, I am now suffering after being on pain meds long term and it isn't addiction either. I know have bowel problems thanks to these damn drugs.

The best way to deal with CP is through exercise, a good healthy mind and outlook, plus a good healthy diet and lifestyle. Seriously, I have lived like this for decades and have been able to survive, even though I have pain from my shoulders up that never goes under 8 out of 10. And I often get migraines that are caused by the trapped nerve root in the left side of my neck. And right now, I am cooking up another one of these accursed head aches. It's coming and will probably have me in bed in a day or two and there's nothing I can do to stop it. Once I have it, all I can do is use an ice pack. I can't take anymore drugs, because they only make me sick.
I am on low doses of Codeine and Paracetamol, for a long time and it is not good, but I can't get through without it thanks to the damage in my neck.

So, if this is the type of pain clinic, I encourage you to go in there with a positive outlook. And that outlook should be, that you have accepted that you are going to die of old age suffering from CP, but that you want someone to show you how you can live a better life with this rotten thing and be able to plug back in to society and do some of the constructive things you used to do.
If you go looking for a cure, you will more than likely be heartily disappointed, which will raise your stress levels that will in turn flare up all your pain and make you ten times worse.

Plug in, be fully engaged in your own care an work hard to do what they want you to do. Oh and you can ask questions and let them know if you believe they are pushing you too far too fast. Always know your body, listen to it, then pass that information on to the clinicians. If you don't they are blind and will instead push you or encourage you to work at a certain level.

I hope this has been of some assistance to you.

Best of luck and keep us informed!


Petere

I wish the ring (this Chronic Pain) had never come to me. I wish none of this had happened. (Frodo Baggins)
So do all who live to see such times. But that is not for them to decide. All we have to decide, is what to do with the time that is given to us. (Gandalf the Grey)

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1 year 10 months ago #28651 by WAP
Replied by WAP on topic Info on pain Clinics?
Thank you, Peter, for your reply --
I have been given the Endone but I have NEVER taken as told to as I am not wanting to be addicted to these dreadful drugs -- I am a very laid back person and am not at all anxious -- I try hard to do what I have to do but the pain makes it impossible -- as my spine is collapsing and my height has gone from 5 foot 1 & 1/2 inches to now 4 foot 9 inches -- I want to be able to walk again even if only for a short walk and also to enable me to do the chores in my home. I ask how can one exercise when you are unable to walk for more than a few feet -- and yes I can bend over, in fact, that can ease the pain a little -- believe me I would gladly exercise and always have I am still very supple.

Reduce my drug intake! -- I hardly take any drugs at all except for 2 Panamax every 4 hours EVERY day -- If I had my way I would not be taking anything -- but I have to get some pain relief, I have a good outlook on life and I have a good diet too.
I have seen the Neuro Surgeon who wanted to operate --but when I questioned him on how and where he said --
'yes it could be a problem and things may not go well' I ask you would you allow an operation with that attitude?

I ask how do these clinics get one mobile again when the spine has collapsed to the degree that it has?

This pain started in 1972 -- and had continually got worse over the years.

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1 year 10 months ago #28652 by Peter
Replied by Peter on topic Info on pain Clinics?
Sounds like you are already doing the best you can to be healthy.

Yes I know it sounds impossible. I think the exercises that they will or should teach you, will be specifically designed to help you with your type of problem.

Years ago when I went to one over here in WA, we all had private sessions with the physio before the clinic started so that he knew all our limits and disabilities. We had one guy who used to be a Tuna fisherman and his hips, knees and ankles were all but shot. Too much wear and tear, leaning over the side of a Tuna boat hauling in big fish.

He could hardly walk when he came to the clinic, but 4 weeks later he was a different man. Sure, he was still limping a fair bit, but he was a lot stronger in his gate and was able to walk more positively and with less pain too. Now, he was going to end up with hip and knee replacements at some stage, but because he was still youngish, they refused to do them. So he was at the clinic learning what he can do to better his life while he waited to get old enough for them to do the replacements.

I understand where you are coming from with your problems. There is no way they can improve your spine, but if there is a way they can strengthen your core up to such an extent that it may support your crumbling spine more, then it may very well help you quite a bit.

As for your question, my answer is NO!

I saw a neuro back in the late 1990s and he told me that my lower spine was fusing due to there being no disc material in the L5/S1 joint. He said if they did the operation, I would be back every 10 years having it done again and would likely suffer a lot of pain and disability in between. He did say some people have a great result, but many do not. He said to me, you move really well for a man without a disc, so if I were you, I would never allow anyone to touch your spine. So I didn't.

Best advice I ever listened to. Now that joint is all but frozen, but the next one up is playing up a bit. I have far less pain in my lower back today, providing I don't stand too long. If I do stand too long, then the burning and terrible pain starts. But at least it isn't aching all the time anymore.

Your problem is quite a bit different to mine and as with many different problems, sometimes surgery is the only option. For me though, I would try all manner of therapies long before going under the knife.

So it's up to you what you do, but if they can teach you the right kind of exercises to help support your spine, you might actually get some relief. It's not all about fitness. It's about exercising to reduce pain and to support weak areas and to help prevent future injury.


Peter

I wish the ring (this Chronic Pain) had never come to me. I wish none of this had happened. (Frodo Baggins)
So do all who live to see such times. But that is not for them to decide. All we have to decide, is what to do with the time that is given to us. (Gandalf the Grey)

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1 year 10 months ago #28653 by WAP
Replied by WAP on topic Info on pain Clinics?
Thanks again Peter,

I still exercise I always have I can believe it or not still touch my toes -- and in fact it relieves my pain to a degree --as does leaning on a shopping trolly, I can also do push-ups and I still do some yoga -- I used to be a Gymnast and at the age of 82 I am in pretty good shape other than this darn spine -- in fact many of the Drs that had not seen me b4 were shocked when they read my age and said they would have taken me of about 60>65
I am sure this is genetic as my Mother was crippled with the same at the age of 60 >64.
I just need to be able to WALK and stand, the pain was so bad yesterday I never even got much relief in bed last night.

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