Hi! I am from Victoria. A chronic pain sufferer too. Has been reading on the concerns subject review. I really like to know if anyone here have any information. How effective , is it subsidize by medicare or only on Private health fund? And please share if you have any information about this treatment. I am actually very sensitive to drugs. Appears my phsycial system is reacting very sensitive to most medication. Took myself off pain relief (Panadol Osteo - hardly touch my pain issue, only on very low dose of Tramadol (Zaldiar; 37.5mg Tramadol/paracetamol 325mg) when in really severe pain (pain scale 7-8/10)
Hi I’m new to this group but wanted to share my experience with my first Ketamine infusion two weeks ago.
I’m a 35yr women who has been dealing with chronic pain for over 12yrs.
I can go into more detail later about my pain but wanted to share my experience with the infusion.
I was at my absolute end, I was told absolutely no more surgery I had been on every pain medication under the sun and was on large amounts and quantities, I have also been seeing a psychologist who specializes in chronic pain.
My magical husband was on a forum that mentioned Ketamine Infusion and asked me if I had heard of it, then became the research and hunt for me to find a Dr that I could talk to about it and if it would be worth a try on me. (I live in a small coastal town in Central Queensland with no pain specialists)
I have family in Melbourne and came across two Dr that offered this procedure, I sent my file to both and waited.
Then five weeks later my life began to turn around, I had a phone call from one of them who offered to have a phone consultation with me, from there I was booked in and flew to a Melbourne six weeks later.
I was hopeful but knew the odds that it didn’t work for everyone and the possible side effects.
I was in hospital for seven nights and most of the time I felt like a giant marshmallow I had a few moments like once a day when I was due for my next Valium in which I just felt scared and hid under my sheets until the nurse came and sat with me until the Valium kicked in.
Two weeks post infusion I am not taking any medication daily, (first time in 10yrs) I am only taking like a quarter of what I used to and only when needed.
My pain has gone from a 7-8 to a 0-3 which is like living in a new body it’s amazing.
I am able to walk along the beach in minimal to no pain and am hoping to get back on my paddle board this weekend.
I don’t know how long this goodness will last but I’m great full for the two weeks and hoping it lasts for up to 6 months if not more.
I will keep an update each week to let you know how it’s progressing.
I hope my positive experience will help people and encourage people not to give up and there are amazing Drs out there that want to help and to consider some not so generic approaches
After 4 decades of debilitating lifestyle pain and complications, I have now been diagnosed with Fibromyalgia. I also have Lupus, Sjogrens, Asthma, UV Allergy, Hypersensitivity, Photophobia and another much unknown Misophonia. I have managed to keep down full time work until very recently where the pain was getting worse and no one took much notice of it until this year.
I had my first ketamine infusion over 7 days and I cannot believe the relief of the raw SFN I had experienced over the last 2 years. Everything down to brushing my teeth, showering , wearing clothes, shoes anything with any moment was agonising.
I have developed SFN after a severe bout of Aseptic meningitis of which I have had multiple bouts. After all these years I believe I have finally found a specialist who is able to assist me on the whole.
The numbness was encountered first in 1986 after a severe bout of what was diagnosed as viral encephalomyelitis which left me paralysed and curled up and in a coma for a time. I came out with continuing numbness from my waist down which I actually normalised. It had lessened over the decades but with each bout of meningitis the pain and tingling and stabbing and unbearable cramping, stabbing and electrical shocks returned. I have had countless lumbar punctures tests confirmed the meningitis. I usually get it during the flu season and last year I got it after a bout of very bad flu and make the SFN excruciating even more. It even hurt to blink. I has now settled once again from my waist down and I have areas and patches from time to time in other areas arms, face etc.
I have the usual Lupus mediations and have been on Methotrexate for a long time too. The methotrexate was stopped for the ketamine.
I am hopeful that ketamine infusions will continue to work for me as I came home and couldn't believe the lessened agony of the SFN. Everything else is still extremely painful but I think this is a breakthrough.
Does anyone else have multiple chronic conditions and what are there experiences with ongoing ketamine infusion treatment as I am keen to continue with this treatment moving forward as it allows me to at least have some time with a few normal household chores.
Hoping everyone is keeping as well as they can.