Thanks Mrs Shingles. It's certainly a big decision to make, but to me, just a mind blowing discovery, that I wish I hadn't been deterred from earlier. I've encountered so many awful medical professionals along the way, it's been a terrible journey. I'm happy to answer any questions you might have, and also, I'm going to keep updating my blog about my recovery.. Ups and downs!
Believe me when I learned that I was not going to get the final implant in 8 weeks, my first response is how long then, bombshell hit dead on target when they announced a minimum of 12 months, I was numb and still asked why, they had to wait for funding as this years rounds had been spent, I said well do you realise how cruel you are being after getting pain relief for the first time in years, getting sleep after years of not sleeping, why offer the trial so far out when you have no funding, it seems they do multiple trials and then work out who is most deserving for the final implant, you can count on one hand how many actual receive the final implant from a year of trials.
So to say I was easy with it no way, I knew what to look forward to, just the thought of another 12 months really got me down and depressed, I just wanted the relief I was getting from the trial.
It doesn't really matter which battery you get placed in, even though mine is rechargeable through the skin, the life is 10 years max before it needs replacing, mine is on 24/7, the difference is some programs cycle on and off in 15 min cycles others on all the time, it has only turned of a few times, once was because of a hematite bracelet I wore on my left hand, as my battery is in my left buttock, another was our magnetic wool underblanket, so that came off the bed, and some shopping centres security scanners have played funny buggers with the unit, especially the ones on the top of the desk used to deactivate security tags, if you are too close leaning to the bench when one is passed through it turns the battery off.
I don't think the nerves will ever retrain themselves, not when they have been physically damaged, and it is not just the damaged nerves involved any more, most end up with over sensitised nervous systems which is why we get these unexplained areas of pain, discolouration, and swelling no where near our injury sites.
Oh thanks for those additional tips Don. They tell you that those things are ok. I am certainly going to avoid all of those security sensors, and I've already bid a sad farewell to my electric blanket, but who would have thought leaning forward on the bench would have an effect?!
I think for anyone reading, it (obviously) really helps to have private health insurance. I have the top cover with HCF, and I've never had to pay a cent out of pocket, nor had to wait. It's definitely the best value health insurance I've ever had, and I've been with a few different funds. It's won a lot of awards for best value HI too, so if you can join, or change over, I'd recommend doing so, sooner, rather than later.
To disable the security tags they use in retail, there is a electronic magnet placed under the counter, you can here it go off when a product is passed over it, it will also wipe out any cards that have a strip on that records your information, credit cards, bank cards and such, if you lean against the counter as it goes off, the magnetic pulse is strong enough to interrupt the battery/control unit.
You know the magnet they supply for emergency shutdown and how strong that magnet is, well it is a bit of an overkill, especially if your body doesn't have a big fat layer under the skin, as any magnet will shut of the device, My battery back is very visible and protrudes out, you can feel all the leads where they go in, hell you can see the leads where they come out of my back, cross the spine and travel down to my left buttock, that is how much body fat I carry, the fat layer makes a difference as well to magnetic vulnerability.
I still use my electric blanket to heat my bed, just don't leave it on any more, which I admit was very handy during the cold months to keep my back warm and limit pain caused by the cold, the good old wheat bag does that job know.
It's great to hear so much good news on the stimulator. I have only heard the bad thing yet all my specialists have told me this is my last resort. We have tried everything , 6 procedures in 9 months and no relief. I can't sit for more then about 5 min with out feeling major pain and sick.
Can cope with the neural pain and numbness but not the lower back pain and being unable to live my life some what normally. Going to dinner, movies, hair dressers driving out of my suburb all to much at the moment. Over the expense, loss of life and now profession due to this. Sure wish there was an easier path!
Hope the stimulator gives some relief.