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Chronic Pain

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National Pain Week 2016 - 25 to 31 July 2016

Michael Clarke is Ambassador for National Pain Week 2016

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 The National Pain Week campaign, an initiative of Chronic Pain Australia, promotes the core aims of:

• De-stigmatising the experience of chronic pain;
• Promoting current thinking that explains chronic pain to the wider Australian community;
• Creating healing relationships between the person in pain and their pain clinician/s and;
• Reducing the isolation and suffering of people in pain. 

You look good. How do you feel?

The invisibility of the pain experience continues to be a major reported issue for people living with it.

People are making a judgement that they are ok, based on their appearance

This theme was first described in the “Pain is not Invisible” project run by Chronic Pain Australia in 2008. Report is available here.

Want to know more? Click here


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The World's First Hackathon for Chronic Pain - 20 to 22 May 2016 in Sydney

The world’s first Hackathon for Chronic Pain will be held over one weekend – 20 to 22 May 2016 in Sydney NSW Australia. It will use a co-design approach to build an online solution – an “app” - in a collaboration between digital technology professionals and people living with the effects of chronic pain. It aims to develop a minimum viable prototype of an app that addresses the lifestyle, social and psychological needs of people living with chronic pain, as identified by people in pain themselves.

Digital professionals include coders, programmers, graphic designers, communications professionals, web designers, project managers, user experience professionals and others in the digital production world. They will form teams including people living with the problems caused by chronic pain, collaborating intensively to build an app to solve the problems as identified by people living with chronic pain.

“Co-design” helps break down stigma

Co-design methodology is about developing ideas with the people who will benefit from the end solution. Being mentored by people living with chronic pain and their loved ones, the teams of digital professionals will, from the very beginning, start to understand what it is like to live with pain, an experience frequently not understood. This in itself helps reduce the stigma associated with chronic pain. We hope to create an app with value, quality and community trust.

How does it happen?

A highly experienced project team led by Anne-Marie Elias - aka Chief Disruptor - will bring the hack to life during the weekend of 20 to 22 May 2016 in Sydney. As a co- design hackathon, people living with chronic pain, their families and carers will contribute to the development of the app/website. They will mentor the hackers, in person and via Skype. Through this sharing of experiences we will ‘invert’ the usual approach to health apps, making the health consumer integral to the creation of the product, strengthening trust and improving experience.

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Chronic Pain Australia

Sometimes the journey TAKES YOU TO A PLACE UNMAPPED. Anything is possible

-Chronic Pain Australia

national.office@chronicpainaustralia.org.au

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