I've written a blog about chronic pain. Mainly so my friends and family can 'get it' but also so I don't have to keep repeating myself all the time! I feel like a weight has been lifted cause people will now have some idea what it is like. I haven't really gone too much into the dismal days but it is more like a semi inspirational/informational type blog. Now I'm perfectly aware that in the grand scheme of things, my pain isn't as bad or debilitating as many of yours here on the CP forum and half of it is being controlled reasonably well. In this sense I hope I don't offend anyone but as I say in my blog, just because there are people in worse situations than me, it doesn't make my challenges insignificant. :dry: Feel free to read (from second page, bottom post) if you would like, leave a comment if it'll work, or not read it at all (I completely understand) Thinking of you all x
Boatwrightkatestuff.blogspot.com
I have just read it. That is excellent Kate! I hope a lot of people will find it and benefit from it. It explains chronic pain very clearly and it is very easy to understand. I will await the next instalment 🙂
Mary
Not every day is a good day, but there is good in every day.
"“It’s delightful when your imaginations come true, isn’t it?” ― L.M. Montgomery, Anne of Green Gables
Kate just reading your blog, excellently written, thought I better let you know where you have stated you went up to 30mg and bam, the next reference you have they decreased it from 20mg to 25mg Ithink you meant 30mg to 25mg, you might want to change it, otherwise good on you for putting your story out there.
Don
I really liked your blog Kate 🙂 I also appreciated reading the "spoon" theory...thank you.
i think it is a wonderful idea kate.it does get tiring having to repeat your whole medical/chronic pain issues.you should be proud of what you have done.take care.
chronic migraines and headaches for over 25 years.
intercystitial cystitis.
chronic facial pain due to allergies
irratable bowel syndrome
chronic upper tummy pain
fibromyalgia
depression
Good on you Kate in being proactive and finding somewhere positive to tell your story about your journey with CP. Well Done!
I would leave a comment, but it will hook up to my google account and there goes my anonymity! So don't be disappointed if people don't leave a comment for such reasons; it doesn't mean people aren't reading and benefiting from your journey.
All pain is relative however, if it robs you of the ability to do things that you used to be able to do and enjoy; well, in my book, that makes us all equal from that perspective.
Don't forget about us on the forum though; your contributions here are valued too 🙂
Hugs,
Fee
Great Blog Kate.
xxx
Thank you for all your kind comments. Fee I won't be going anywhere - I stil need to talk to people who really understand. Eliza I have been reading about your struggles and I am so so sorry. I tried to keep all the depression stuff out of my blog cause it's truly truly awful what we have to go through. I know it doesn't help much but I'm thinking of you and everyone else who is debilitated by this horrid beast that is chronic pain (and the fatigue that goes with it - no one can understand it until they've felt it) >:(
Thanks Katie, thinking of you too!
I'm so chronically fatigued I can't even get out of bed, I just want lay here and close my eyes because I can hardly function! It's hard enough battling chronic pain without chronic debilitating fatigue.
I have so much housework to do and I just can't do it, I see. My gp next again however, I told him last month I am chronically fatigued and I have this irritating rash! He said it could be from the Lyrica.
So many issues popping up and so many different dr's I could see but where do. We draw the line. And stop.
My iPad is. Having a mind of its own and putting in ..... And capitol letters so I have to stop here, maybe its a sign to take. A step back and say if you want to keep on going. And investigating. Issues. Like my. Knee and. Fatigue it. Will never stop and go on forever....
And I will look like a.nutter or a. Hyper............ If. You get my gist..
My car. Which is not. Even. 2. Years. Old Which I. Hardly drive its in for repairs. Auto though it needs. 2 clutches. Replaaced...i cant even deal with that issue. Its. A. Golf....And now my iPad. Needs fixing too....soooooo tired..........
Take-care Katie xxx
Loved reading your Blog Kate. 🙂 ♥ Thanks so much for sharing that with us. I've never really understood how these things work... I'm actually a real dummy when it comes to computers.
My limited ability with pictures is self taught via trial and error more than anything. 😆
Is a Blog like an on line diary that you write in every day and let the people know that you want to have access to it?
Or is it less private than that and open to 'all and sundry'?
Also, do you need to be on Facebook to have a Blog?
I guess typing these questions in to google would answer them just as easily... :silly: 😳
Sorry to be a PITA! 😆 *trotts off to type questions in to google* :blink:
Hug to you Kate,
🙂 Di xo
Eliza, just sending you lots of cyber hugs & I really hope you feel a little bit better soon. Katie the same goes for you. Take it easy. GF xx
