Christmas

G'day Johnno,

You are a top bloke! I hope your employer appreciates you! Sorry to hear you are suffering so much pain, I truly wish you better days. Humidity is horrible to tolerate and with extra pain levels too....yuck!

I wish you and your family a very Merry Christmas with plenty of good tucker, great company and a few laughs too!!

All the best 🙂

The BIG day is almost upon us HO HO HO Merry Christmas to one and all!

We are having 17 for lunch tomorrow and who ever is left for tea followed by our closest friends for lunch on Boxing Day. I am planning on making the desserts today to lighten the load for tomorrow....pacing! Then I have to do some cleaning too....pacing! I need 36 hours today so I can pace properly!!

At least all the purchasing is done and all gifts wrapped.

I hope all of you that have children or grandchildren hear great shrills of excitement tomorrow with what Santa has brought! It is such a magical time for the younger ones.

For those of you that maybe having a quiet or alone Christmas I truly hope there will be some kind of surprise for you....maybe a simple phonecall from someone who is dear to you, or something in your day to bring a broad smile to you.

For all of those whom need to travel....take great care on the roads!

May everyones pain levels be kind tomorrow! May there be lots of joy in your day too!

:cheer: 😛 😆

Same to you Florrie and all our friends here in the forum!

Oh my goodness, I hope your bed is nice and comfortable, because after the next couple of days, you might end up spending some time in it. Boy, have you planned out a punishing regime or what. When I read this and see the word 'pacing' I started laughing.

Well, here's hoping you get it all done without any flare-up and you have a wonderful time with family and friends.

take care everyone and enjoy the day.

For those who are on their own, please know that there will be some of us monitoring the Forum. So if you need to chat, just post something.

Peter

Thank you Florrie and I hope you enjoy your Christmas with low pain levels! You certainly aren't really acquainted with the word "pace" LOL.

I would not be able to cope with all those people without severe consequences. Although while we are at the beach in our caravan, I will be one day. But it is very informal and I won't have anything else to do such as housework, so it will be ok.

Merry Christmas and don't forget to breathe 🙂

Mary

Merry Christmas to all, I hope that tomorrow is a great day for everyone, whether you are celebrating alone in a couple or with families.

Let's hope it can be a pain free day for all, that is my wish to Santa this year, what an amazing gift it would be for all!

Merry Christmas xoxo

Don

To all the moderators who give their time to keep this site available despite their own chronic pain, and provide us with a safe place to share our individual journeys , both the good and the bad, a huge THANK YOU
. The support , information and friendships made here has made a huge difference to my life, and my journey is no longer a solitary one.
Thank you all and i wish you all a very Merry Christmas and a safe and Happy New Year!!

Hey MrsS ,

You are real caring lady I hope you and yours have lovely festive season and I hope that all our fellow pain sufferers have a restful and as pain free day as possible

Johnno

Thank you Mrs. S. Thank you for being caring and supportive too. We love what we do and it also helps us with our own pain. Have a wonderful Christmas and New Year.

Mary

I second that " THANK YOU to all the moderators". i have noticed how much time and energy they contribute, at times they go to great lengths to help any members in crisis and they do this with considerable skill and genuine caring. So thank you moderators.

A Happy Christmas to everyone, may it be a no or low pain day.

Josie

well, i survived christmas relatively unscathed, i had a productive day with the sewing machine so that i kept myself too occupied to start getting miserable, but thanks for all the kind thoughts and support from a week or so when i last posted- i logged of and had not seen them til now- i really would like to give a speical thanks to you all but an extra special one for the moderators who make sure there is somewhere for us to come and be safe! thanks guys!
i had a wonderful surprise from my support worker, on christmas eve she brought me a big box of goceries and goodies for me and my little dog, she knew i had been struggling and wantted to make sure i had more than just the absolite basics in the house, so lots of treats fot my dog and treats for me- it had me in tears as i had mis calculated the fact that pensions day was christmas day which meant they would pay it on christmas eve, she had been concerned that even thopugh she knew my meny would have gone in that i would struggle to get my shopping done on christmas eve with all the extra congestion in the shops combined with the hot day ( affects my MS) so she had decided to make sure i had not just the staples for a few days but the treats she knew i had not been able to stretch too- her kindness had me reduced to tears! care workers are definately not highly paid so to spend quite a descent amount on groceries etc for me was a big deal to me, it was a real act of kindness!

i am still struggling at present but another positve thing for me is that i had been sent to the rehab out patient clinic at the repat hospital, the idea was to look at out patient physio but the consultant could see that things had become very difficult so she has suggested a 2week admission as an inpatient possibly in mid to late january adn as much as i detest the iea of more hospital stays in general, this time i think it is really the best option and certainly the best way to get my situation reviewed fully. the day before i was told this i had been to the pain unit for a pump refill (where i only see the nurses) i pointed out that i had not seen my doctor for a review since the previous april and i was having severe pain at times not covered by the pump, some of this was pain in my leg when i tried to stand and pivot transfer from wheelchair to chair etc or in the bathroom/shower and it was that pain that wAS contributing to some of the problems with transfers recently- at the last appointment i had not seen the doctor at the pain unit for almost 2 yrs and had needed to really fight to get a review, i had been sent to the unit psychiatrist to help me cope instead but he got me the appointment with my pain consultant- he ahd also said that in future all long term patients would have to be reviewed 6 montly. i still did not have a date for the nest review and it was over 6 months so i reminded the Nursing staff at my refil and they confirmed it had not been booked it! (so much for that promis last april) even though i pointed out i am barely able to transfer later in the day due to pain and have had several very close calls with falls, the earliest i could be seem was end of april 2014! so the fact that only a day or so later when the rehab guys (the same pschiatrist had made that referral too) suggested the 2 week inpatient review, could not have come at a better time.

i am determined that somehow 2014 will be a better year, not expecting miracles (htough it may be nice) but things like my carer's thoughtful gift and the posts froms you guys, have reminded me that even when it seems as though one is not being heard and is very alone, that there are peopl who care and hear us and that is a big help- then i think i need to have a change in mind set, as a nurse i always felt i needed to be an advocate for my patients when needed but when it comes to my own needs i have just taken the attitude that i need to wait my turn and accept what the sytem doles out - that waiting lists are just the way things work. Now i finally have accepted that it really is the sqeaky wheel that gets the grease so i need to slef advocate far more than i have in the past and it does not mesan i will be doing someone else out of there "turn". sounds simple and i intend to do it but i'm in my early 50's and when i was a little girl the message we were taught was "those who ask will not get-it's not polite" but i think that only applies to 5 yr olds in the playground, its just taken me a rather long time to learn!

anyway, i am a couple of days early but HAPPY NEW YEAR

Glad you were able to get some sewing done Kebsa. And what a wonderful and kind support worker she must be to have done that for you.
I hope that 2014 will be a great year for you Kebsa, you are an incredibly strong person who has such a lot to contend with, and i wish you all the best for your hospital stay . Hopefully they will be able to review your needs and you will receive the help you need to improve your situation.
Wishing you all the best for a positive 2014
Mrs S