Introduce Yourself Here.....

Why Johhno? Because you are such a caring, understanding person with a wicked sense of humour.......Hugs

Hi Jeanette
Wow you sure have been and still going through a lot and to be honest I don't know how you manage working; but only you can decide if it's time to retire. Talk to your boys/men and see what they have to say.
Welcome to the group and take care.

Hi everyone, I'm Emily and I'm 25... I have CRPS and currently being tested for either arthritis or fibromyalgia. Originally I had pain in just my right wrist 2 years ago but it has spread to my left wrist and now I sort of have a dull ache throughout my body. I've had to stop uni and work at the moment due to side effects of medication and learning to manage pain, but I'm taking each day and moment as it comes along. I was so glad to find Chronic Pain Australia and the forum, it's great to see everyone joining together to share experiences and support each other.

Anyway just thought I'd say hi, thanks for reading 🙂

Hey Em-Ja,

Never give in ok have you asked if you could see a nuerosurgeon one never knows , it's worth a try .

Johnno

Thanks Johno! Yeah I have seen a neurosurgeon and there was nothing he could do unfortunately. But he didn't specialise In chronic pain, so if the rheumatologist doesn't go well it may be another good option to explore. 🙂

Did you go for an X-ray,MRI,CT ?

Yeah I was in hospital when the neurosurgeon first saw me and then I had a follow up appointment. I've had ultrasounds, bone scans and 4 MRIs done so far as well as lots of blood tests. The last MRI I had done, they had big earphones that played music you could listen to which was a nice change to the noises! Basically the rheumatologist wants to see if the new pain is inflammatory or not. 🙂 It all gets complicated!

Hi Emily,
I'm so sorry that you have CRPS and at such a young age 🙁 It sucks doesn't it!!! I've been living with chronic pain for 16 years now following a car accident but to cut a VERY long story short, two years ago I had a procedure called Radiofrequency Neurotomies (burning of the nerves) in my neck and due to protocol not being followed I now have CRPS in my Left Arm, however I also believe it is making its way to other areas in my body due to similar symptoms now in my other arm and legs too.
I'm glad you found us Emily as you will find heaps of love and support here from fellow sufferers and who will never judge just be there for you.

I look forward to getting to know you further

Jo 🙂

Hi Jo, thanks for your message and for sharing your story. Sorry you've had to live with chronic pain for 16 years, it does suck.
Yeah it is a bit strange being young (a few doctors have told me I'd grow out of it!) but I keep trying to make the most of things. It's amazing how the internet can connect us all, I'm only discovering online communities now.
Thanks for your welcome message and I look forward to getting to know you too 🙂

Hi Emily and welcome
I'm sorry to hear you have such awful pain at such a young age. I see you are seeing or going to see a Rheumatologist which is great. Have you had any blood tests to test the rheumatoid factor? I've got Fibromyalgia and lately have had a lot of trouble with my hands and wrists. I know I have osteoarthritis in my thumbs and have had surgery on one; waiting to get the other one done. In the mean time my Dr believes I now have carpel tunnel....hence the series of blood tests I have been having. I'm waiting also to get into a Neurologist and a Rheumatologist not only for the carpel tunnel but also check out if there are any other diseases I have that come under the rhuematology area. It's very frustrating not being able to do anything with sore hands and wrists.
Keep writing here and let us know how you are getting on.

Gayl

Jo,

Were you going to give some heads up re medial branch blockers I go in Friday and if you have any doubts ,I am also having eight done at once .
Could you pm me

Johnno

Hi Gayl, thank you for your welcome. Yes, I had that blood test last week and I find out the results on Friday. The rheumatologist has been the first specialist to really take a big picture approach, as the neurosurgeon couldn't spot anything physically wrong on scans and sort of dismissed me. But it was good to get an overview at least. I also had a Mri of my wrist so the rheumatologist can check for inflammation etc.
Thanks for sharing your story and journey, sore hands and wrists are frustrating. I hope all your tests go well, please let me know how they go.
It's great to know there is a community here to support one and other. 🙂

John,
I've sent you an email

Jo

Hi Emily
Welcome to the family hun. I'm sorry that you have to go through all this at such an age but with all of us you will find advice, friendship, a place to cry and a place to just let it all out.
The best thing to come out of your condition is to know that your not alone and even though we can only communicate via the web, we will always be there and do our best to help you in any way we can.

Cheers
Jacquie

Hi Emily,

Always remember "YOU ARE NOT ALONE" we will be there when you really want us and sometimes when you don't to cheer you up or make you laugh or smile to also keep you on the straight and narrow.
You'll probably never see us peering through your screen you may catch up with some of us on a coffee morning and if you do you will find that for a short time when you are chatting face to face with fellow sufferers your pain will recede and your day will seem so much better.
We brisvegans are trying to arrange a date and at the moment and the 2nd of August is booked at coffee club loganholme ( Hyperdome)so all who are coming please say yes on coffee morning .
Cheers guys & gals

Johnno