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 healthcare34
Joined: 1 second ago
Posts: 0
30/10/2014 11:41 pm  

It is additionally prudent to check the gears and guarantee that they are the most recent. It is better to search in for a condition of-the-workmanship office.


   
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 blossoms
Joined: 1 second ago
Posts: 0
02/11/2014 5:11 pm  

Dear Wendles,
I'm still finding out how to use this website and how to post messages so I am replying to your message now.
My neck and arm pain comes from my neck. A hot pack and warmer weather helps the pain and the muscle spasms. Gentle exercise as well, though not when I have a setback or an inflammatory exacerbation.
Looking forward to more messaging.
blossoms


   
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 Carissa McMahon
Member
Joined: 8 years ago
Posts: 45
02/11/2014 9:16 pm  

Hi Sponge,

I just read your post and my heart went out to you, I'm only new to this forum myself but your post really grabbed me having had 6 surgeries affected my life in such a big way I can't even imagine what you have been through.

I'm sorry that I don't have any advice for you I just wanted to offer my support and empathy I really hope that you will find some sort of way to enjoy your grand kids as hard as it is to do that with ongoing pain, my kids are the ones that keep me holding my head up and refusing to let this pain take over my life.

You will find so much support on this site already it has changed my life and thanks to the advice I have received I'm feeling stronger in my ability to keep going I hope you find the same.


   
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 John Heydon
Member
Joined: 10 years ago
Posts: 5
04/11/2014 8:27 pm  

Hi, my name is John. I have had neuropathic pain for some 15 years. It is in the lower limbs and is a cyclical pain that comes and goes on an aproximate 7 second cycle. I only have the pain when relaxing or trying to sleep. I have have tried all antidepressants, anticonvulsants and opoids, to limited success, but the side effects are not tollerable. I had surgery on the spine (laminectomy) about 7 years ago which was supposed to fix the problem but it didn't. I'm interested in finding out what other sufferers have tried either with success or otherwise.
Regards,
John.


   
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 Don Grapentin
Member
Joined: 10 years ago
Posts: 869
05/11/2014 12:04 am  

Hi John and welcome
Nerve damage in the lower back ends up affecting the lower limbs, I too was promised surgery would solve the problem, when that failed they tried again, only making the pain worse, I too have been through drug trials, and the side effects outweighed any gain, in fact anticonvulsants and antidepressants alter my personality on top of nasty side effects, I can only tolerate one opiate, even that has only a slight pain killing effectiveness, what has given me better relief has been the spinal stimulator implant, it doesn't get rid of all the pain, but now I do get some sleep, for years I suffered with sleep deprivation, as you said night time is the worse, there is nothing to distract you from the pain, and it was made worse because of constant back spasms.
The stim is not for everyone, just like medication, that is why they conduct a 7 day trial period, if it works they go ahead with the final implant, I still have bad days, there is no getting around that, but the pain reduction I do get, makes it worthwhile. I also completed a pain management course this gave me the tools to self manage my pain, and worthwhile doing.

Don


   
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 John Heydon
Member
Joined: 10 years ago
Posts: 5
06/11/2014 6:27 pm  

Thanks Don,
I nearly did a trial implant, but got cold feet and cancelled! More surgery. I think I will re-investigate with my pain specialist.
Thanks for the advice.
Regards, John.


   
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 Don Grapentin
Member
Joined: 10 years ago
Posts: 869
06/11/2014 6:42 pm  

Hi John,
I had the same thoughts before I had my trial, but when the specialist explained how the trial would proceed I decided to go ahead, in the trial it is only a small cut, about the same size as keyhole surgery, the final implant involves to cuts, no bigger than 2 inches.
The only thing to be mindful of is adhering to the strict guidelines, for the trial they only last 7 days, for the final implant the restrictions are for a month, this is so the leads get scar tissue to hold the leads in place, the biggest failure is lead migration, so by sticking to the restrictions, limits this happening, for me this has given back some independence in life.

Don


   
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 Laurie Reynolds
Member
Joined: 9 years ago
Posts: 180
06/11/2014 7:28 pm  

:angry: I am a man of nearly 65 years of age who had a work accident in 1982


   
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 Mary
Member
Joined: 6 years ago
Posts: 2092
Topic starter 07/11/2014 8:23 am  

HI wingman,

I am so sorry for you loss and please remember that we are all here to talk to you if you need a chat or some support. I think you have an amazing attitude to life and I think we can all learn so much from you.

All the best,
Mary

Not every day is a good day, but there is good in every day.

"“It’s delightful when your imaginations come true, isn’t it?” ― L.M. Montgomery, Anne of Green Gables


   
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 Terina
Member
Joined: 11 years ago
Posts: 289
07/11/2014 11:47 am  

Oh Wingman, please accept my heartfelt sympathy. You are enduring a very difficult and sad period of your life that no parent wishes to go through.
My heart and thoughts are very much with you. Take care xx


   
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 Laurie Reynolds
Member
Joined: 9 years ago
Posts: 180
07/11/2014 12:38 pm  

G,Day Florrie yes it does take a toll at time,s i would really Love to meet another Nice Lady who would like ti share this wide world we all try an Live in and have a Coffee or Tea and a chin wag as i have never been with another women that is had Sex with any one else never ever my only true Love was my Wife who gave me 3 so Bueutifull children they are so good looking they dont take after me for sure .As this crazy world we all seem to try an live in i just would like to meet a Lady who is not after money as i dont have any money all i have is my bike and a Great Bunch of friends who love to ride and do a lot of charity work and its fun helping other people .Its better to give than recieve dont you think .But there are Days i feel like just staying in bed and take my Pain Med,s it really gives me the Pip at times it really rules your Life Pain 24/7 you cant go away without will i have enough pill to get me through the Time im will be away the Dr gave me a Letter saying the Med,s im on to Show im Not a Druggie and have used it now and then any way my Youngest child is 36 now and going to Unie in Sydney she wants to be a Teacher my God a Teacher for the very Little tacker,s nice but i want to be a Grand Dad one day my Son is Not Married yet whats wrong with this Younger Generation ???


   
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 Johnno
Member /moderator
Joined: 7 years ago
Posts: 892
07/11/2014 2:06 pm  

Hey Wingman,

Sorry to hear off your loss mate if your anywhere near brisvegas give me a call we could two lite beers and the meds were on we'd be leg less .
Johnno

as long as I wake up alive I'm happy Because it could be worse


   
ReplyQuote
 Carissa McMahon
Member
Joined: 8 years ago
Posts: 45
08/11/2014 7:38 pm  

Hi Wingman

I just wanted to say I'm so very sorry for your loss and I think you are amazing. For a person to go through so much and stay strong is an inspiration especially after loosing your wife, I can't even imagine doing this without my husband.

If you need to chat I'm here and while I can't offer you much in the way of advice I can listen x


   
ReplyQuote
 Laurie Reynolds
Member
Joined: 9 years ago
Posts: 180
08/11/2014 8:12 pm  

G,Day Carissa yes it is hard at times my Other Son just turned 40 still not married like my Daughter i would Love to have some grand kids to spoil i keep busy with my new goldwing motor bike doing a lot of charity work and my Bike club keep me grounded i still miss my Wife and Son every day i think about them .I like to get onto this forum and talk to other people who are in Pain its the pits as it rules my Life cant just jump on my Bike an go you have to think do i have enoght medication to last or go to my GP to stock up pain meds its a Pain in the Bum sorry .How are you going what did they do to you ive had that many operation to many opps No More Now Talk soon Wingman stay well Ok ?


   
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 Peter
Member
Joined: 12 years ago
Posts: 1512
08/11/2014 9:37 pm  

Hi Wingman,

So very sorry for your loss and thank you for sharing this very sad news with us.

These are times to just say that we are here for you and we support you. There isn't much else anyone can say, because we will all be touched by death at some point, but hopefully not under such tragic circumstances as your son, then you and the rest of the family.

Please take care of yourself and keep in touch Mate.

Peter

I wish the ring (this Chronic Pain) had never come to me. I wish none of this had happened. (Frodo Baggins)
So do all who live to see such times. But that is not for them to decide. All we have to decide, is what to do with the time that is given to us. (Gandalf the Grey)


   
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