More a Comment than a Topic
Today i was talking to a neighbour which is in itself unusual. She was saying how how her son is suffering physically and emotionally from the after effects of a major motor vehicle accident. This young man has had multiple injuries that are unlikely to ever fully go away. He is suffering and is doing so in a very brave manner. What he may or may not realise is the degree of emotional suffering his parents are enduring. They are worried about his pain and how his future maybe effected. I think that people living with CP are understandably self consumed with their condition. I am as guilty as anyone else and possibly more so than i realise.
My point is simple. As much as you are hurting please take the time to say thankyou to those people or that one individual that is there for you. It needed be a daily thing but just now and then would be good. Often their efforts are overlooked or taken for granted. A young person may even see the efforts of a parent as just their parental obligations. I come from a disgraceful family where help was never, ever offered. When i see the care that some of you get from loved ones i think how brilliant that is.
Justs few words....
Mate, I'm right with you on that one!
Some of us don't have any help or assistance at all and have to fend for ourselves. But I agree, if you have anyone helping you, they should know that you appreciate them very much.
Mate, have you suggested to your neighbour about seeing if their son would be interested in reading this forum?
Just a thought. He might get something out of it. He doesn't even have to join up. He can just read through some of the stories on here and see if any of it helps him at all.
Also, have you suggested to his parents that they try to get him referred to a multi-disciplinary pain clinic?
If not, please do, because it may help him progress so much quicker if he can learn to self-manage his pain condition now, before it gets any worse. At the very least, the education he gets will help him understand his pain more.
Thank you so much for bringing this topic up, because it is so damn important for all of us.
I wish the ring (this Chronic Pain) had never come to me. I wish none of this had happened. (Frodo Baggins)
So do all who live to see such times. But that is not for them to decide. All we have to decide, is what to do with the time that is given to us. (Gandalf the Grey)
Hi Lindsay, how right you are those around us need just as much support as we do, and being appreciative of the support they give you only builds on that relationship, a simple thank you, a hug or even a card of appreciation is all it takes.
Like you I have come from a very disjointed family, while I have never received one ounce of support or understanding not just with my current condition but all my life, having a very supportive immediate home group is one thing I don't want to lose, it takes a long time to build up love and trust from a broken childhood.
Peter. I told his mother about this site so i hope she tells him. If not i will. As you say he doesn't have to join. Given that he will be having many more operations he would be wise to at least talk to Pain management psychologist to soften the blow of what's in front of him. If i get told to bugger off and mind my own business at least the thought will be in his head. Its now when he is seeing so many specialists and surgeons that his emotional state needs quietening. Thanks Peter.
Don. A supportive family even with all its normal ups and downs is priceless. A normal environment must be quite something. I wouldn't know. To know someone's got your back ( in your case literally ) must give you breathing space in all things. Its the little things that they do that are really important. Being next of kin on medical forms. Driving you to and from medical appointments. Bringing you stuff while you are in hospital like clean pyjamas and toothpaste ! Getting your prescriptions and cooking you a meal when you get home. Hospitals kick you out so quickly now that isolated people go home in pain and unwell and then have to cook or starve. And bad luck if your fridge was empty before you went to hospital. Yes it is time for a thankyou to a supportive family or friend.