Venting

I am so glad that you are feeling somewhat better. As I said, if we can get our heads around the fact that there will be down times and that they are totally normal, then it's easier to work out ways to cope with them. It's the same for people with any type of chronic condition. I teach people chronic condition management and I can see how much easier it is for them when they "get" the idea that there will be down times.

But hey, there are more up times than down times and the better weather is on its way! I always reckon I am a different person in the Summer and it's not just because it's warmer; I think that everything just seems brighter and you can spend a bit of time outdoors without freezing 🙂

Mary

I am so glad that you are feeling somewhat better. As I said, if we can get our heads around the fact that there will be down times and that they are totally normal, then it's easier to work out ways to cope with them. It's the same for people with any type of chronic condition. I teach people chronic condition management and I can see how much easier it is for them when they "get" the idea that there will be down times.

But hey, there are more up times than down times and the better weather is on its way! I always reckon I am a different person in the Summer and it's not just because it's warmer; I think that everything just seems brighter and you can spend a bit of time outdoors without freezing 🙂

Mary

I am so glad that you are feeling somewhat better. As I said, if we can get our heads around the fact that there will be down times and that they are totally normal, then it's easier to work out ways to cope with them. It's the same for people with any type of chronic condition. I teach people chronic condition management and I can see how much easier it is for them when they "get" the idea that there will be down times.

But hey, there are more up times than down times and the better weather is on its way! I always reckon I am a different person in the Summer and it's not just because it's warmer; I think that everything just seems brighter and you can spend a bit of time outdoors without freezing 🙂

Mary

I am so glad that you are feeling somewhat better. As I said, if we can get our heads around the fact that there will be down times and that they are totally normal, then it's easier to work out ways to cope with them. It's the same for people with any type of chronic condition. I teach people chronic condition management and I can see how much easier it is for them when they "get" the idea that there will be down times.

But hey, there are more up times than down times and the better weather is on its way! I always reckon I am a different person in the Summer and it's not just because it's warmer; I think that everything just seems brighter and you can spend a bit of time outdoors without freezing 🙂

Mary

I'm exactly the same Mary. I'm so much better in summer when I can get into the sunshine. Winter where I am is so extreme and it's so gloomy! I love spring and summer. Bring it on!

Hi Lindajane

PAIN! it rules our thoughts, our lives and our bodies! Everyone's experience and stories is unique and everyone is amazing, so dont forget that. The fact we get up in the morning and put one foot in front of the other (or wheel) is awesome. So Lindajane listen to Peter and the others you cant compare yourselves with others as their story is just that theirs. Be proud that you make it through the day, be proud that you cooked dinner, be proud that you were able to have a happy moment with your family. You are Great!

Enjoy the sun

Wendles

When you are down everything just seems to get worse.

I was just starting to find my way out of the dark place i'm in ,but news that my Dad has suddenly become worse has knocked me. This is especially hard as we had planned to visit this hols but due to my newest injury we had decided it was not wise.Now I am regretting that choice. Could I cope with the trip, will it cause more damage, is this my last chance so many things running trough my head .

Sometime pain just gets in the way.

Wendles

Sorry to hear about your Dad Wendles.

Speak with your doctor, but I don't think that you will do more damage if you visit. You may do more "damage" by not going - stress can cause a lot more pain and although seeing your Dad may be stressful, not going may make you worry much more.

Think of every tiny thing that you can use to make your trip comfortable and pace yourself to the enth degree! Rest whenever it's humanly possible. Heatpacks and whatever other strategies that you use to manage.

All the best,
Mary

Sorry to hear this Wendles. Thinking of you.

Wendles, I am so sorry to hear your Dad has had a turn for the worst. I really hope you can manage a trip to visit him. Take care, all the best 🙂

Hi
Thank you so much for your thoughts. Mary you are so right about the stress as soon as I decided to go visit Dad it was like a weight was lifted of my shoulders.I cant risk waiting to Christmas as he may not make it. I am doing all that I can do by visiting I can not change the cancer but I can be there for my Dad, My physio is happy for me to go but couldnt get into my doc he is away. so I will follow his example an go too. 🙂

Thanx again it helps having such wonderful support through difficult times.

Wendles

Great to hear Wendles. I am sure that you will be ok. But you will be under stress, so remember pacing, pacing, pacing 🙂

All the best,

Mary

Feeling angry and frustrated. No employer would want to employ me with my disability and Chronic Pain condition..as no two days are alike to plan my life. Not being able to catch a bus etc, will cost me more to travel by taxi for the few hrs of work per week. Had given up wanting to try. Just got informed my Levi has gone-up by $360 per yr which is very necessary for the Maintenance by Strata Mgrs. Not happy. Cost of living is increasing all the time but not much of an increase in the Disability Pension, to cope with it. I suppose, I got to stop and think of those in a worst off place in their lives than I am. When pain is constant, it becomes easy to be selfish I reckon. Isolation resulting through constrains laid by CP and other issues, doesn't help either.

Guess I will feel kinder and more considerate in my thoughts tomorrow, after I spend a bit of time with my Maker,on whom I depend, to be become energised in my mind, and to rise above the very draining life Chronic Pain sufferers.

Hey Natasha.

Sounds like you're having a bad time at the moment. Man o man, have I had days, even weeks like that. End up in bed a lot, even the tears turn up too when the pain levels go through the roof. Only thing I do, is like you. Just spend some time meditating on my Faith, saying my Rosary and using that as a way to remain psychologically and emotionally stable. And it works too. Doesn't help the pain much though. I am just able to keep my head in a healthy place.

You take care and just give yourself some down time today and see how you feel tomorrow.

Peter

Well the carnival is over hit the wharf with a thump bad chest cough coughing stuff I didn't know they had invented nearly gone now thankfully .
First morning on board AAhhh the smell of the open ocean asked the boss if she fancied a of tea so from mid ships to stern up two floor in the lift along to the tea machine two cups of tea done , turn around crap (fresh Danish,croissants ) drool dripping on floor get a tray two Danish two teas 1 tray held in one hand the other on trusted cane got back to the cabin , wow in deep shits of pain right arm burning through the top of elbows, by Sunday night I was praying for relief , Monday morning off to on board doctor severe tennis elbow so I was on anti-inflam pills as well at a cost of $150.00 .
At least by Tuesday I was in less pain did the touristy thing for the day tours bought the usual duty free booze .
Go back to work on Thursday at 7am and made redundant by 9 am .
Shit on a razor blade at least I have held it together so far I might be able to go an a pension through my super fund now as I asked about it earlier this year and they said have you been unemployed for three months with a permanent disability .
But at least the holiday of relaxation made me realize how much pain I can live without so bring it on .
Johnno