Hi Guys, in the midst of a shitty day when I went seen the specialist with my back he said the disc has reherniated I felt gutted and really despondent. Anyway as the day progressed I had this so call friend attack me for all I ever do is go to the doctor, like it was something I wanted to do or even change if I wanted at this point however, my realisation that actually come through her comment was you know the biggest lesson today taught me since suffering this pain, I have learnt to do things with my family. Since Christmas the pain not got less, however since the tramadol slow release I been able to function better pain wise. So I taken my family camping for 4 days, and this weekend we all hopped on the barge me in my car and we all went by boat to magnetic island and had a picnic on a beach. We lived here for 5 years and never been to the island so the one thing I notice it made me make a special effort to do things with my kids that they will remember. I don't have to do large things like camping and break myself like that did. However it was a good things for the kids too. It made them realise yes this has so drastically changed me, our lives, our outlook on our future and even my day to day thinking it made me purposely endeavour to do something with my kids, even if it as mundane as going to shopping centre on a hired scooter and we sit down and have lunch. These little things has greatly changed my outlook to more positive.
Anyway just though I share my realisation
Hi Toni I am a regular at my doctors we are all on first name basis, sure I get told I go to the doctors a lot and people can't understand why, so I don't justify why to them, in fact my medical history in reality is none of their business and only let on what I want them to know.
I found taking the slow release pain medication a whole lot easier, not just for the pain control but side effects are are either none or very little and you don't have to cart around the pharmacy with you when you go out, apart from say endone for that breakthrough pain.
We have spoken in some threads about getting out and how beneficial it is to person with CP, not just for you but also the ones you love, it's a time of reconnection outside of the house where you are feeling better, the pain not be gone but your mind is off the pain and focused on being out and enjoying being there. That's why we push ourselves to go out even if we don't feel like going because of pain, otherwise you get caught in this rut and never venture out, leading to more depression, loneliness, guilt, isolation and increased pain.
You have not done a pain management course as of yet if I recall and you are on a waiting list, these types of topics are covered and you will learn more tools to make life for you and your family a whole lot better.