would some type of a "facilitator course" be a way forward with community based self-management groups? it may be one way to start off, to give a group of people a specific set of skills to run the programmes according to a set of guidelines - to enable better measurement of progress and outcomes - and to ensure a consistent quality. as facilitators gained more experience - they could undertake train the trainer programmes and train more facilitators to open up more community based programmes - until it spread like a proverbial spider web.
I suppose I'm looking at it from the point of view of a framework for the concept.
Yes I guess that could happen. ACtually I think Coralie might be able to help you with that question better than me, because she has been involved with something similar in NSW.
But I do have to say that for any community run clinics to get up and running to help either teach or support consumers who are trying to self-manage their pain condition, it would have to have govt funding and support for it to even get started. There are so many people out there like us, that if anyone tried to get something small started up, I think they would find themselves swamped very quickly and not being able to cope.
I think you will find that there are people in different parts of he country who are doing what you have suggested or have done it. And they will be doing a great job and getting a huge amount of experience and knowledge. But they will be pretty much off the radar and hard to find, simply because they don't have the funds to advertise or the govt backing to keep going.
For instance, there are Fibromyalgia support networks in different parts of the country and they have meetings with guest speakers and smaller support meetings also.
Yet, they are out in the cold on their own without any real financial support from the govt or the corporate sector.
We need these community based and run clinics up and running right round the country. They need to be catered for under the Medicare scheme and then all your suggestions about facilitator courses and train the trainer programmes, will be the order of the day.
I wish the ring (this Chronic Pain) had never come to me. I wish none of this had happened. (Frodo Baggins)
So do all who live to see such times. But that is not for them to decide. All we have to decide, is what to do with the time that is given to us. (Gandalf the Grey)
I have planned to write some information on self-management but I am very time poor at the moment due to family issues and study.
A good starting point is the Arthritis Foundation in each state (except SA and NSW). They should all be running self-management programs. The Stanford Model of Self-Management is a generic model that is well suited to all types of Chronic Conditions (including pain) and, for most people, it has positive outcomes. I am not sure where I would be now if I hadn't participated in one of these courses in 2007. Stanford runs on one day (2.5 hours) each week for 6 weeks.
Stanford Programs are usually run by trained peer leaders. Sometimes there is a health professional but there is always one peer leader. I think that this aspect is very important because peers obviously have a greater understanding of what it is like living with chronic conditions.
There are also programs that are run as a one on one (health professional to patient). The one that I am familiar with is the Flinders Program. It is also a generic program and it involves manageable goal setting, problem solving, care plans and much more. It is used in various parts of Australia and overseas. It was developed here at Flinders University over 10 years ago.
Here is a link to give you an idea of what the Stanford Programs are about:
I hope this is of some help. Please let me know if I can help any further.
An addition to this post: Arthritis SA is no longer running these valuable programs. It has not been a popular decision with either the public or some sectors of the medical profession. There are things happening to address this. Meanwhile the Royal Adelaide Hospital and the Flinders Medical Centre continue to run multidisciplinary pain management programs.
Not every day is a good day, but there is good in every day.
"“It’s delightful when your imaginations come true, isn’t it?” ― L.M. Montgomery, Anne of Green Gables
Last edit: 7 years 9 months ago by Mary. Reason: Out of date information