As you have no doubt read, we are in a bit of a mess at the moment. Only a small fraction of the threads available for you to read are here at present as we have had a crash following a software update. We expect that things will return to normal sometime next week.
You both sound as though you have had a terrible time for over 20 years now. It's hard when one person in the family has chronic pain, but it must surely be really difficult with you both suffering. I hope that we can somehow be of help and support to you.
Not every day is a good day, but there is good in every day.
"“It’s delightful when your imaginations come true, isn’t it?” ― L.M. Montgomery, Anne of Green Gables
hi my name is Tom and I am a 22 year old chef.I am still working but have severe loss of cartilage in both, but mainly left knee and continuing lower back problems due to having 4 herniated discs a few years back. I am prescribed oxycontin and endone.I also take panadol osteo, krill/fish oil and multivitamins.I have been on these meds for approx. 6 months.I am on a waiting list of 12-18 months to visit the orthopaedic unit at my local hospital.I am concerned about tolerance and the general effects of having these sort of problems at such a young age. I tend to have some mood problems due to the pain and also the general blood levels of the medication at times.I believe that despite all this I am doing a good job at work but it seems that that view isn't shared by all and that there is some sort of perception of me being a drug addict or unstable because of my moods.I do not abuse my medications and do not have any other problems with drugs or alcohol.While I admit that I like going out and enjoying myself it isn't something that happens on a regular basis. I also lost my little cousin 2 weeks before christmas in 2011,from suicide, and still sometimes struggle with this.I've spoken to phone counsellors,when I needed someone to talk to, but I think I need advice from people with similar life experiences.I hope to learn as much as I can and be able to offer support to people,even though I am quite young, I have been dealing with chronic pain of some description for over 6 years.I dont really know what to do or say and I guess this might not be the best place to tell my life story, but Im just starting to become a bit frazzled about the whole thing.Any advice given will be greatly appreciated.Im not here for sympathy, I just need to understand whats going on a bit better.
Last edit: 7 years 9 months ago by Oxytotem. Reason: wanted to add more detail
Welcome to the forum. Sorry to hear that you started your chronic pain (CP) journey so young. You will find as you meet more people on the forum that mood levels are something a lot of us struggle with...who wouldn't really trying to cope with living with daily pain plus the pain medications can also have side effects of depression and anxiety. It also makes it harder that a lot of the 'normal, healthy' people around us have no idea what it's like living with CP so they don't know how to be supportive. That's why a forum of like minded people is of such value.
I'm sorry to hear about your cousin too; that would be a tough one to process emotionally.
2 books to help explain what's happening to your body having CP and ways to help self manage it are "Manage your pain" and "Explain pain". Also, at the top of this webpage is a resources tab with a drop down menu saying pain self management or something similar. When you go to this page, there are a whole lot of downloadable helpful booklets about living with CP.
We also recommend doing a multidisciplinary pain management course if you can. You can Google pain management programs, ask your GP or ring your hospital to ask if there are any near you. I have also found a pain psychologist invaluable help. Usually there is a pain physician or specialist at these clinics too as well as the psychologist who can help with your medication. A physio is also usually part of the team.
Sorry that you got to check out our website when we've just had a few problems with a new software upgrade. Hopefully all will be restored soon and I hope you can stick around. I would love to hear of your experience of living with CP for so long and, as you have already done pain management, your experience and things you have learned along the way. I'm sure between the two of you, you must be a wealth of wisdom.
I can't imagine how difficult it must have been for you at times with you both having CP. Did you find it also helped at times living with someone who understood?
The following user(s) said Thank You: terseyau, Oxytotem
It seems at the moment you have alot going on, so I hope that reading the information at this web site and chatting with the supportive, informitive group of CP effected people here will help some. Just being able to realise that there are others going through the same things is a huge relief, to remove some of that isolation and loneliness that comes with CP.
I hope you find a smile today
There is always a SMILE
in your day,
you just need to find it!
Hi mate I lost my cousin last year although I haven't seen him in many years it sent me crazy knowing how he was lost to us. I absolutely hate Taking medication and I'm on a bucket load some for nerve damage and general pain 13 all up . And when there working well I feel like I shouldn't be taking them, as I have been told time and time again you wouldn't tell a diabetic to stop medication or a heart patient to stop . We are on medication for a problem .I have 3 herniated disc one ruptured a little . All lower back , both knees are bone on bone and cane left shoulder Doesn't hurt much it has 4 screws in it . All up I had 6 knee surgeries 2 shoulder surgeries 15 needles in back with nerve burning . I'm 40 now and should be at work it all started at 25 onwards . It sucks big time just rember your not alone bud .I Guess what I'm saying and it's hard to keep hope up . I try to say to my self one day it will get better.
life can be cruel I will get up an win.facet
joint deseise , bulging discs , mechanical pain neuropathic .
Last edit: 7 years 9 months ago by braddo1972. Reason: spelling as I'm on phone and tiny buttons.