Venting

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1 year 9 months ago #30026 by Johnno
Replied by Johnno on topic Venting
Hi all,

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Thank you
Johnno

as long as I wake up alive I'm happy
Because it could be worse

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4 months 2 weeks ago #30478 by Brett3
Replied by Brett3 on topic Venting
I am having the worse week. Just feel like crying all the time. I really am over the pain. It doesn’t lessen just back to huge flare ups that last months now not weeks. The so called specialists say once it get to fusing itself the pain settles, what a huge load of cow pat that is. I really could just go punch the wall, but would only hurts more. But then I would forget my pain and just have pain in hand , mmm

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4 months 2 weeks ago #30479 by pamcarr
Replied by pamcarr on topic Venting
it is the worst way to live, i hope that something will help you soon

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4 months 2 weeks ago #30484 by Peter
Replied by Peter on topic Venting
Gosh, I am so glad I listened to my neurosurgeon back the late 1990s when he told me to not have a fusion done of my L5S1 joint and let it fuse naturally. So far it has gone exactly as he told me it would. When I listen to your story and Pam's story, I just shudder. I just cannot comprehend the suffering you guys are going through, but I take my hat off to you both for the strength you show.
I really hope that you get some relief soon.

I wish the ring (this Chronic Pain) had never come to me. I wish none of this had happened. (Frodo Baggins)
So do all who live to see such times. But that is not for them to decide. All we have to decide, is what to do with the time that is given to us. (Gandalf the Grey)
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4 months 2 weeks ago #30487 by pamcarr
Replied by pamcarr on topic Venting
its not fun living this way..i actually asked if they could do a fusion from top to bottom as they do for young girls with scoliosis - but no, they can only do what is needed, I need to just get a big fusion all this fusing 2 or 3 levels here and there, it is just always something happening somewhere, im over it! can you tell.. haha

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3 months 2 weeks ago #30512 by Brett3
Replied by Brett3 on topic Venting
Oh Pam it definitely is not fun, it’s crap. I couldn’t imagine what you have gone through with your surgery’s. I am already seizing up in my thoracic and my chest is so tight breathing in is very painful. Forget about the rest of my spine. Though I have never had spine surgery. (I personally put it off and opted for alternative treatments). Finally after a few months the pain dr got me an appointment, I see him tomorrow, it’s a review after my last injection to see where the next one will go. Hardly seemed worth it all. By the time they got me in and had the six injections and now they all have worn off. I Still had about 5/6 to do. With school holidays now, I have to leave hours early to get a safe car park and have to hang around for hours. It’s going to be a shite day .

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