Nerve Pain

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4 years 1 week ago #26408 by kitty
Nerve Pain was created by kitty
Hi, I haven't posted for a long time.
I just wondered how others cope with nerve pain. I have problems with nerves in my neck and spine causing no end of problems. Sciatica, painful feet and ankles on the lower end that is relentless, migraines and arm/shoulder pain, tingling, numbness etc. I also have myofacial pain and fm/cfs, among the long list of health problems. I've had Facet Joint injections on both ends and many other treatments over the years to try and hold off surgery. I'm pretty much at the last efforts before I'll have to give in and go ahead with surgery. I really don't want to go through with the surgery. Other health issues will complicate things and I'm scared of the outcomes.
Has anyone had any success with any new treatment for nerve pain?
Kitty

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4 years 1 week ago #26409 by arjay
Replied by arjay on topic Nerve Pain
Hi Kitty

Looks like you got the jackpot with symptoms. :(

From what you said in your post it seems that most of your body is causing you pain symptoms.

Have they diagnosed the cause of this and whether surgery specifically is able to reduce or alleviate the pain your experiencing.

I get the impression a lot of the members that have surgery end up with more problems and pain in the long run.

I would opt for a second opinion before going down this road, but of course thats a decision that you would have to make.

As to new treatments I assume youve been through the mill with tests and diagnosis to date, The problem with most pain relief,"non surgical" treatments they seem so variable from person to person, and even on different days I think most of what,s available is accessible , apart from research in this area.

There are many advances being made in research into pain receptors but to my knowledge its still its infancy but who knows, maybe tomorrow will change.

I assume you attended pain management clinics and hopefully they have offered to help you with treatment and probably be the most knowledgeable in this area.

Perhaps if you gave more information about yourself other members could offer different additional suggestions.

Here.s hoping you get some clarity with your health issues

Warm regards and Hugs from Arjay/Ron :) :)

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4 years 1 week ago #26411 by jo.m
Replied by jo.m on topic Nerve Pain
Hi Kitty,
Good to have you back :)

I'm pretty much in the same situation :(

My surgeon wants to operate and my pain specialist wants to trial a spinal stimulator. A lot to process but I am pretty sure I'm not going for surgery and a trial s what it is so nothing to lose I think?

Nerve pain is the pits and I also have CRPS in my arm so a double whammy :( One doctor did say that some research has shown that the spinal stimulator has had some good results for CRPS? Here's hoping!!!!

I'm currently balancing Physio, exercise, hot pack, tens, psychologist,GP and meds, so something has to give!!!! Oh yes and pacing lol love that word!!

Good luck Kitty, keep us posted on how you go and pass on any tips that work for you

Jo

"Just thinkin' about tomorrow
Clears away the cobwebs and the sorrow 'til there's none

When I'm stuck with a day that's grey and lonely
I just stick out my chin and grin and say, oh

The sun will come out tomorrow
So you gotta hang on
'til tomorrow, come what may!"

Annie - The Movie

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4 years 1 week ago #26416 by Johnno
Replied by Johnno on topic Nerve Pain
Hi Kitty,
I just wondered have you been to a multidisciplinary pain management course they have the ability to help you do things without overdoing it or pacing.
This dreaded word "PACING"comes out a lot on this forum because so many of us don't do things half arsed we tend to want to do the whole job today.
Tsk tsk tsk no no no don't do today what you can do tomorrow I know we tend to find it hard but we all have the pain ceiling and it is different for all of us because we aren't all the same (duh) so we need to know our own limits and stop there.
Work alongside your GP,specialists and physiotherapist and if you don't agree with them get a second opinion and even a third , some of us don't question our doctors enough make them work for their pay.
Hope some of the ideas help

Johnno

as long as I wake up alive I'm happy
Because it could be worse

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4 years 1 week ago #26425 by kitty
Replied by kitty on topic Nerve Pain
Thankyou Johnno, I have done, as well as working closely with a pain specialist. I do manage well mostly, just get fed up at times. Ive tried so many treatments over the years, trying to avoid surgery. Looks like I'm going to have to make the decision soon though. They're telling me its gotten beyond the point of waiting any longer. You just hear so many stories of people being worse off afterwards. As it is now with my other health issues they're concerned that my body won't stand the surgery however impingement is affecting things. I believe in second or more opinions. Learnt the hard way..I'm going to team next week yo discuss any other options. Can't have physio anymore. I have found meditation to be a saving grace with body and mind.
Hope you're doing ok
Kitty

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4 years 1 week ago #26445 by kitty
Replied by kitty on topic Nerve Pain
Hi Arjay,
I have posted on my intro about the majority. I do have widespread pain issues, Fm, Cfs and other issues with arthritis, calcific tendonitis, joint problems, aneurysm, stroke, thyroid issues as well as severe degeneration, herniated disc etc
I do attend a pain specialist, who has been helping me cope with putting off the surgery for as long as possible. I've run the mill of treatment for my conditions over the years, both traditional and alternative treatments. Some helpful, some not. The nerve pain etc I'm having at present is due to the spinal issues I have and I have few options left to help control the pain and help with movement etc. With new treatments becoming available all the time I thought I'd see if anyone had had any success with anything. Having said all this I am in the process of weaning myself of fentanyl patches, of course realising that this will cause increased pain etc. Numerous reasons why I'm going off the patches, one of which is adverse health probs, effects, and also if I do end up going down the surgery road its best if I'm not already on such potent medication.
I've recently been offered decompression treatment. I'm doing some homework before I consider trying the treatment. Its had some good reviews. . I trust my pain Dr to do the best for my situation, but it doesn't hurt to ask if anyone has had success with other treatments. The nerve pain is relentless unfortunately and not a lot I've tried eases it.
Thankyou for your reply

Kath

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