Jaw Pain Discussion

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8 years 4 weeks ago #11841 by BIY
Replied by BIY on topic Jaw Pain Discussion
Hi Wendles,

I sort of have similar story; twisted my neck as I fell down onto the floor after tripping on computer cable, and my cheek hit the floor. It was with such force that I broke my elbow at the same time because it ended up underneath me with my full body weight on it.

I have pain in all the same areas as you and for the first 4 years all the treatment was aimed at soft tissue damage in the neck and I had trigger point physio, TENS, massage, acupuncture all in the neck and shoulder area and had xrays of the head, neck and shoulders with nothing much to explain the amount of pain. No one thought to examine my jaw. The first symptoms were constant 24/7 headaches and neck pain (initially thought it was from the sling for my arm) then shoulder pain got worse and migraines gradually grew into daily. I started having back tooth pain not long after the injury and this got worse over time radiating up into the gums and jaw. Kept going to dentist thinking I had cavity in my tooth, but she couldn't find anything wrong. Gradually got worse and worse til 4 years later could hardly open my mouth and by the time I got to see oral specialist, he said I was only a few months off having lock jaw where you're jaw is locked shut for months at a time (scary prospect).

The reason I am sharing this with you is that like you, the focus of all my treating doctors was on the neck, shoulder, headache and migraine and the jaw got left to deteriorate through non diagnosis or treatment and has now become chronic.

There is a very easy way to find out if you have TMJ (jaw) dysfunction damage and that is through an MRI (not xray) where it will show up clearly. At least if you had that, you would know what you are dealing with in regards to your jaw. I would really hate to see anyone end up in the same place as me when there's such an easy test to find out. I didn't even have to pay for the MRI because it was through a public hospital.

If you had the MRI and it showed no TMJ dysfunction, at least you could rule that out, but, on the other hand, if you do have it, at least it can be picked up and not left to deteriorate any further because at least an oral specialist can make you an night time occlusal splint as a first step in treatment.

Sorry if I'm coming across as telling you what to do...I really don't mean to be like that; it's only because I care and wouldn't wish what I've got on anyone and who knows if I'd even be in this position right now if I'd had early intervention. It's a bit like CP with GPs not knowing much about it; a lot of dentists are the same with TMJ and, in fact, I was seeing a dentist for those 4 years and kept presenting with all these symptoms, but it took her 4 years to connect the dots and suspect TMJ and refer me onto a specialist. I had also been repeatedly told by doctors that it was nerve/soft tissue damage in my neck that was causing all the problems, too, so I passed this neck diagnosis as the cause of all my pain onto my dentist and every new physio I went to as well which didn't help.

Hugs,
Fee
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8 years 3 weeks ago #11990 by Wendles
Replied by Wendles on topic Jaw Pain Discussion
Hi Fee
Thank you for the advice and dont worry you dont sound pushy we all worry about each other here. But your easy way for me to check if I have TMJ isnt so easy. The nearest MRI ir 6 hours away and only every second week and doctors dont give referals for MRI any more so thats a $300 bill along with the trip and accomadation or the one in Brisbane an 18 hour trip. I am waiting to see what my new specialist will do as have only just started to see him. My jaw has only joined in with the party in recent times it wasnt one of the original pains. I find that bowen therapy helps abit with decressing the swelling and pain but just cant afford to go too often.
But I do plan to bring the problem with my jaw to the specialists attention so hopefully he will do an MRI next time I am down there.

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8 years 2 weeks ago #12346 by BIY
Replied by BIY on topic Jaw Pain Discussion
Hi Wendles,

Yes, it's easy to forget that what is easily accessible to some is not so easy for others. My oral specialist teaches at the MRI hospital so I didn't even have to apply to wc for approval, it was just bulk billed. Sorry to hear it is not so accessible for you and costs so much.

I asked my neurologist if we could try more Botox in the face area like I had seen on the internet, but he said that I was having the maximum safe dose of Botox that I could have at one time, so we decided to put back the bit that he 'borrowed' from the migraine points and give the whole dose to trying to manage the migraines instead of using a bit of the Botox for the TMJ and a bit for the migraines and not having the best pain relief for either. So we've gone back to the original protocol for just helping the migraines and apart from a migraine trying to make a cameo appearance today and not taking hold, the migraine cycle has been halted since a few days after the last dose yay!

Instead, my GP has given me Norspan patches to help with the TMJ pain. It has brought the pain levels down to mostly a tolerable level, but because the pain went down, I over did the chatting with my husband, and it's brought the levels up a bit more again. It's a bit of a bummer because the pain prior to the Norspan patch stopped me from overdoing the talking, but having the pain levels reduced is much more of a temptation to want to talk more doh!

I found this thing online that you wear on your head at night made of foam and it's supposed to keep your jaw off the pillow. I'm a side sleeper and I wake up in such bad pain every morning from my jaw's contact with the pillow during the night (just cannot seem to do the back sleeping thing; just feels so unnatural as i'm a fetal position sleeper.

Just as well my hubby sleeps in the other room now from my CP disturbed sleeping cos you can just imagine the look can't you...splint in the mouth and foam around the head LOL!!! Attractive; NOT!

www.thereliefshop.com/medical-supplies-s...&disableMobileView=1

It's worth a look just for the laugh! But I thought hey, why not give it a go; it may just help :)

Do you find your jaw gets sore from contact with the pillow?

Hope you've recovered from your recent horsey encounter.

:) Fee

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8 years 2 weeks ago #12355 by Wendles
Replied by Wendles on topic Jaw Pain Discussion
Hi Fee
My jaw has been a bit high since the horse insident as it was the side that got hit. Cant win can I. It has left me with bad pain in the back of the head and neck (a flare up) and constant head aches just above the eye and more pain in the jaw. But the horse is fine :lol:
Yes I do find that sleeping on my jaw is difficult and painful but at least for me it is only one side that is a problem but I do still seem to roll over some nights. I hope your new contraption works. Anything is worth a try.
How is your migraines going? I hope you have still managed to have a break from them. I undestand the pain and how totally draining they can be when they occur one after the other. Your brain feels totally fried and your just have no life. The hardest is not wanting to go anywhere just in case you get a migraine as they are so totally debilitating and can leave you stranded. I hope that you get some releif this time round.
Hugs
Wendles

There is always a SMILE
in your day,
you just need to find it!

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8 years 2 weeks ago #12361 by BIY
Replied by BIY on topic Jaw Pain Discussion
Oh Wendles, what a bummer that of either side the horse could have picked, he hit that one!

It was only one side for me too up til mid this year and so that was my saving grace that at least I had one side that was ok to sleep on. Now that it's become bilateral, both sides are sore to sleep on which has opened up a whole new dimension to the CP journey!

That's another reason I've been pushy about getting tested cos would hate to see you progressing down the same path because bilateral deterioration means double the pain (such fun, not!) and also makes sleeping so much harder. When I get a flare up of TMJ, I also get increased pain in the areas you describe.

OMG, it's just awesome to have someone else understand about the migraines. When they were daily, I got afraid to walk out the front door because if they hit even while I was just going for a walk, the vision disturbance and dizziness just took all my confidence away to even stay upright successfully. Very disorienting.

A neurologist once told me that a whole lot of toxins get released during a migraine and it makes it even harder if while you get hit with a new migraine the next day, you're still in 'hangover' mode from the one you had the day before!

Hope your flare up settles soon.

Hugs,
Fee
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8 years 2 weeks ago #12389 by Wendles
Replied by Wendles on topic Jaw Pain Discussion
Morning Fee

Wow! I would say it's great, but wouldnt wish this on my worst enemy, to find someone who understands the terror, confussion and worry that goes with having a migraine in an unknown location alone. It makes our work so small. My migraines mimic a stroke (called hemiplegic migraines) so I also have numbness down one complete side, get slurred speach and problems expressing myself so to be out somewhere alone when I get one is a scary thought. So I would only go to work, where they knew what to do, and shopped with a friend and home. My world became so small and friends did not understand. The new medicine has helped and having a self inject needle gave me some control back of my life but it is hard to convince myself that it is safe out there. How do you cope with it? Do you have good friends that understand? I hope so.

I will persue the scan for TMJ with my specialist in the next few weeks when I speak with him. Thank you for you concern.

Hugs and I hope you have a smile moment today :cheer:
Wendles

There is always a SMILE
in your day,
you just need to find it!

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