New Member - This is my story

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8 years 3 weeks ago #12155 by Mary
Replied by Mary on topic New Member - This is my story
Hi Angela,

Welcome to the forum. I am sure that you will find a lot of non judgemental empathetic people here.

I am not sure where to begin with your reaction to the pain management program. Pain management programs are not all about "pain killers". A good multidisciplinary pain clinic will address all the issues that go with chronic pain, not just medication.

At the present time, medical science does not have an answer to the chronic pain problem. There is however, some really good research going on that could lead us all to an answer. However, in the meantime, there is a lot that we can do to help to still have a life despite having pain.

If your pain is neuropathic as Fee mentioned, then codeine may not help much. There are medications that are designed to act upon the over sensitized nerves that people with neuropathic pain have. They are drugs that are used for other conditions and they have been found to be useful in the treatment of chronic pain. They can be anti-depressants, anti-convulsants and there are others. If you can get some kind of pain relief then it is possible for you to undertake some of the other strategies that are designed to help you to manage pain.

I can see myself a few years ago when I read your posts - I hope that you can receive the help that you so desperately need so that you can start to enjoy life again.

All the best,

Mary

Not every day is a good day, but there is good in every day.

"“It’s delightful when your imaginations come true, isn’t it?” ― L.M. Montgomery, Anne of Green Gables

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8 years 3 weeks ago #12156 by BIY
Replied by BIY on topic New Member - This is my story
Hi Angela,

It's a pleasure welcoming you because we all on this forum know what it's like to have chronic pain.

The pain management program I went to didn't use medication. It used instead Acceptance Commitment Therapy, Mindfulness, Pacing, Goal setting and I also spent quite a bit of time with the pain psychologist there. They also taught me how to deal with mitigating flare ups through self management and educated me on how chronic pain changes the central nervous system and corrupts the way pain messages are received by the brain.

The books I recommended use these techniques (as opposed to medication) and also the pain management program was based on a book by Russ Harris called "The Reality Slap" which also encompasses all the above techniques as alternative ways to manage pain other than medication.

I can really understand your reluctance to get on the painkiller train and I fought using anything stronger than codeine for many years myself until recent deterioration of my condition sent corresponding high pain levels that stopped me from being able to function and codeine had given me gastroparesis so I couldn't use it anymore anyway. If your pain is bearable without taking anything stronger or more regularly, then you may find that the above techniques will be great tools to have in your tool kit to help you mange your pain.

If your pain has become neuropathic (which is the type of description you talked about with your feet), a pain management program (that is of the educational self-management variety rather than a pain clinic) may help you understand what CP is doing to your body and the ripple effect it causes through over sensitising the central nervous system so that pain messages to the brain become corrupted and faulty.

I fumbled around for 4 years trying to find a diagnosis for my jaw, but here I am 3 years later with a diagnosis, but a chronic condition that is now difficult to treat because of the added complexities of the over sensitization of the central nervous system from developing chronic pain syndrome and neuropathic pain on top of the original medical condition in my jaw. In those 4 years prior, I would have given anything to get a correct diagnosis, but I guess what I'm getting at is that if your condition has become chronic, a single diagnosis is not necessarily going to fix everything. As a lot of us have found, we present conundrums to a lot of the medical profession because of the complexity of chronic pain syndrome. It took me a while to come to terms with the disappointment that a diagnosis didn't change the situation all that much for me and that is where the pain psychologist helped me a lot. Pain psychologists also help with coping with the emotions you expressed about your hopes and dreams and how to set goals to help with building a quality of life despite your CP.

Another thing that may be helpful is to google Chronic Pain Syndrome.

Hugs,
Fee

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8 years 3 weeks ago #12158 by di
Replied by di on topic New Member - This is my story
Hi and welcome Angela, ♥

You've already been given a lot of wonderful and very important information. I just want to say it's lovely to see you joining us here and I look forward to chatting with you after you've settled in.

Hugs to you,
:) Di.

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8 years 2 weeks ago #12172 by grappers
Replied by grappers on topic New Member - This is my story
Hi Angela, you sound like a whole lot of us on the beginning of our pain journey's always looking for a cure, oh how many of wish there was, the sad fact is not even medical science understands chronic pain. You are right that pain killers are not the answer as most don't control chronic pain, Mary has outlined the drugs of choice by specialists now days is a full circle away from opiate and such medication, but rather ones used for depression and seizures, these have been found to be more beneficial in blocking pain paths, put this in hand with what you learn in self management at pain groups and life becomes a lot easier.
A lot of people see doing a pain management course as giving in, where as those who have completed these groups have a very different opinion, and yes I am one, when I first went I thought what a load of hogwash, but when you really sat down and thought about their approach the pieces of a giant puzzle all fell into place. The biggest changing point was realising I was my own worst enemy, I was causing more pain which I did not need, by thoughts and activities and my approach to handling pain.
You don't have to struggle with this journey on your own, these Pain management centres are just for pain, that's the field they specialise in, not like a General GP who sees all ailments and has little or no understanding of chronic pain and it's lasting affects on the human body, so don't see them as just dishing out medication, they stand for a whole lot more.

Hugs Don

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8 years 2 weeks ago #12241 by titan55
Replied by titan55 on topic New Member - This is my story
hi angela.welcome to our forum.as you have discovered,you have come to the right place for advice,support and friendship.i am sending you some big cyber hugs.i think you need them at the moment.i am so sorry to hear what you have been through and still going through.i feel for you,believe me.i hope someone here can give you some good advice for your health issues.take care.

chronic migraines and headaches for over 25 years.
intercystitial cystitis.
chronic facial pain due to allergies
irratable bowel syndrome
chronic upper tummy pain
fibromyalgia
depression

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8 years 2 weeks ago #12245 by Wendles
Replied by Wendles on topic New Member - This is my story
Hi Angela
Welcome to this wonderful supportive community that will offer you support, advice and shoulders when you need them. I hope you find what you need here to help make life with CP a little easier.
Life with CP isnt always the end it is just that you journey in life is taking a different turn. One doctor told me I could never have children, travel and to go to ben and not bother getting out again so I found a new doctor for my team as he had nothing to add to the management my CP. And yes I traveled around the world and I have a child. Sometimes medications give you a chance to use other methods to manage pain that wont work on there own.
Look forward to hearing more from you.
Hugs
Wendles

There is always a SMILE
in your day,
you just need to find it!

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