Jaw Pain Discussion 2

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8 years 1 day ago #12900 by BIY
Jaw Pain Discussion 2 was created by BIY
Just carrying over an old topic.

I had been really excited that the Norspan patches were helping my jaw pain so much for the first few weeks, but then the pain started escalating again.

My GP upped the patch dose to 10mg. So far I've had a lovely old time with feeling very ordinary culminating in a vomit yesterday.

Still feeling pretty queasy today and very 'poor me' cos jaw is still pretty sore. It's really hard to come to terms with finding a medication that seems to work so well for a short time...then suddenly, not! A bit like pulling the rug out from under your feet!

I remember the 1st lot of 5mg patches nearly 5 weeks ago played havoc with depression and anxiety initially, so daresay the 10mg are contributing their 2 bob's worth into the 'poor me'

Is anyone aware of a video imaging type test so that you can see a body part while it's moving and record the results? I'm going to speak to my oral specialist about it. When the pain levels were down, I started talking more and I'm wondering if this has got to do with the escalation. Talking is my worst trigger and I wish there was some way they could diagnostically record what's happening. My GP says that eating should be a worse problem cos it's a resistance type action (however I do have fairly soft diet now). Would love to be able to test what's happening while talking.

Wishing all a good day,
Fee

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8 years 1 day ago #12903 by Mary
Replied by Mary on topic Jaw Pain Discussion 2
Hi Fee,

It's such rotten luck that the new dose is not helping. It sounds like it is actually making you worse! Do you have something to take for the nausea?

I am not aware of any imaging of that type, but that doesn't mean that there isn't something. It is certainly a pest that you are unable to take the neuropathic pain type meds such as lyrica, gabapentin etc. because they are more effective for this type of pain than the other types of analgesics. It's also hard for you because you can't do a slow grading of jaw exercises because you have to use your jaw to speak and eat.

There must be someone in this country who has a lot of expertise in this field, but how do we find them? I wonder if there is some kind of society or something.

Not much help I know, just thinking out loud.

Mary xx

Not every day is a good day, but there is good in every day.

"“It’s delightful when your imaginations come true, isn’t it?” ― L.M. Montgomery, Anne of Green Gables
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8 years 1 day ago #12904 by grappers
Replied by grappers on topic Jaw Pain Discussion 2
Fee the sports institute use one where they place dots on athletes and record the movements for performance enhancing and also to find weaknesses and such, it also used to adapt human movement into modern day cartoon figures for movies, I think you know what I am getting at.
I reckon you are falling into the trap we all fall into pain subsides so we think we can do more, and for you it's one of the biggest pleasures in life speech, it must be so hard holding back and no one would blame you for trying talk when pain is so much better, where we have to pace to do activities you unfortunately have to do the same with your jaw and that is so cruel.


Big Hugs Don

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8 years 1 day ago #12907 by Mary
Replied by Mary on topic Jaw Pain Discussion 2
Just a thought. Have you ever tried acupuncture Fee? It can be hit or miss, but apparently some people find quite a bit of relief from it.

Mary

Not every day is a good day, but there is good in every day.

"“It’s delightful when your imaginations come true, isn’t it?” ― L.M. Montgomery, Anne of Green Gables

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8 years 1 day ago #12917 by BIY
Replied by BIY on topic Jaw Pain Discussion 2
Thanks Mary and Don.

I am seeing the oral specialist soon Don so I will definitely ask him about what you suggested.

The nausea is gradually getting less by this afternoon (good way to lose some kilos ha!)

The jaw pain is slightly less this arvo too, but I don't know if that's the higher dose patch starting to kick in or if its' because I've hardly said a word most of this week...grey areas and multiple reasons....it's one of the things that bugs me most about CP because there's never just one thing you can pin it down to!

I tried acupuncture in the past for migraines Mary and they helped a little temporarily, but not that much. Was going to try acupuncture into the jaw, but the recent flare up from the physical action of the Botox needles into the masseter muscles has put me off because the whole cheek area is so hypersensitized at the moment.

Oh where's that crystal ball when you want it....I want to look in to the ball to see the outcome first....and then I'll try it LOL!!!!

Hugs,
Fee

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8 years 1 day ago #12928 by grappers
Replied by grappers on topic Jaw Pain Discussion 2
Fee I reckon it would be the patch kicking in, those grey areas you are talking about I bet is causing a lot of teeth grinding, lets hope it is the patch and all keeps improving, even those grey areas.

hugs Don

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