Drs tell me I am sufering from an enlarged prostrate which effects nerves in the pevic region ( bladder penis testicles and colon) have touble sitting greater than 5 mins. At times I am incontinent. I have had a cystoscopy and prostrate massage in hospital which seem to aggravate the condition. Stay at home alot as I am uncomfortable.I am on duodart and occasional valium to supposedly relax pelvic floor muscles. Urologist has referred me to a pain management specialist. thanks Brian
Like Fee, I had not heard of your condition. We certainly hear a lot about chronic pelvic pain in women, but not a lot about chronic prostatitis in men. If your problems are caused by nerves firing off when they shouldn't, then massage would certainly have aggravated it. I guess that you have already read about your condition on the internet, but just in case, here are a couple of links:
We have a lot of people reading the forum who are not members, so hopefully there will be someone amongst them who may see this thread and maybe join and help you with some information on how they manage. Meanwhile, I hope that the pain specialist can be of some help to you. Keep us posted as to how you are going if you can.
Good luck,
Mary
Not every day is a good day, but there is good in every day.
"“It’s delightful when your imaginations come true, isn’t it?” ― L.M. Montgomery, Anne of Green Gables
Unfortunately, I have experienced this one myself some years back and as you know, it is one of the worst things a bloke can experience. And boy, you soon learn what pain is in that region and are reminded constantly all day long too.
Fortunately for me though, my condition was very short lived, only about 3 to 4 weeks. They were able to fix my problems with a long course of antibiotics and this seemed to have done the trick. I also did not suffer anywhere near to the extent you are describing in this thread.
Mate, unfortunately this is one area we are a bit thin on when it comes to info, but I can see we will need to do some reading and maybe in the future we can add a whole thread dedicated to this condition, plus we will also do a thread that deals with some of the very painful conditions women suffer within their pelvic region.
In both men and women, anytime a chronic pain condition starts up within the pelvic region, it is so often a most painful condition.
Brian, if you can't find enough information from the internet and no one else here can help you, then do yourself a favour and write out a list of questions to take with you to your next doctors appointment and to the appointment with the pain specialist.
But if any treatment you are getting is actually making you worse, please DO NOT be afraid to speak up right away and tell these people that they are hurting you and making the condition worse.
If they give you the patronising, "Oh come on, be a big boy and put up with it, because it will get better.", then you get upset with them and demand that they listen to you.
I say the above, because I know there are many out there who will speak to men like this and they need to be told that they have crossed the line.
Brian, ask as many questions of your specialists as you need, to help you understand!
I'm sorry I couldn't help anymore than that.
Peter
I wish the ring (this Chronic Pain) had never come to me. I wish none of this had happened. (Frodo Baggins)
So do all who live to see such times. But that is not for them to decide. All we have to decide, is what to do with the time that is given to us. (Gandalf the Grey)
I think this is like the female specific pelvic pain conditions. They are very difficult to deal with and the sufferers really have a hard time. I think normal CP management principles like pacing are not going to be of much use here. How do you pace sitting or walking, when any of these movements can set of hugely painful spasms and cramps. And I know, they bloody hurt big time!
I can only imagine that it would be similar for women too!
We need to see if we can dig up some more info on these subjects and maybe start up some threads for people to look up and educate themselves.
Oh so many different topics to work on.
Peter
I wish the ring (this Chronic Pain) had never come to me. I wish none of this had happened. (Frodo Baggins)
So do all who live to see such times. But that is not for them to decide. All we have to decide, is what to do with the time that is given to us. (Gandalf the Grey)
