Will any doctor help

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8 years 2 months ago #14757 by Mary
Replied by Mary on topic Will any doctor help
All the best to your husband for his recovery Sassy. I hope that it all goes really well for both of you.

Mary

Not every day is a good day, but there is good in every day.

"“It’s delightful when your imaginations come true, isn’t it?” ― L.M. Montgomery, Anne of Green Gables

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8 years 2 months ago #14761 by kebsa
Replied by kebsa on topic Will any doctor help
sassy best wishes for your husbands recovery! its tough when one part of the pair is not 100% bu when both of you are in strife it is that much tougher!! I sympathize with the skin problems too, thankflly avoiding perfumed products, even being careful with washing detergents etc, and using the special skin washes- is usually enough to keep mine in control but silly things will set it off- i was put on hormone replacement therapy to treat osteoporosis and the only type on the PBS now are the skin patches and despite moving the, around letting sites rest for a while before re using it - i was able to get away with them for about a yr now they blister in minutes and even though i removed the patc and have not used one for a few weeks now it seemed to trigger the dermatitis again! and as has been said it is linked to CP as both are made worse from stress!.

you guys ar right about the waether too, i had to go out today to a pain clinic apoointment the other side of town, by horrible bouncy buses! i had kind of prepared myself for an uncomfortbale ride but it was so HUMID! I used to love the hot weather but not since the MS- but even when i liked the heat, i was not a fan of the humid stuff but this year it has been so much more humid -its been hard to cope with and i note they are saing next omday here in adelaide it is expected to be 38 degree celcius and high humidity UGH! i hope i do not have to go out the front door! the comforting thing is that we are now in march- its supposed to be autumn- the extreme tuff cannot last for much longer- can it??!!

take care sissy

ps
as you work for a dermatologist you may have heard more about this than me- i caught a tiny bit of a report on the news receny and it was saying something about a link between allergies and dermatitis in some people with low vitamin levels (not sure if it was Vit D or b12 but i think it was one of those) - might be worth looking into. i know they are considering a link with some of the auto immune condition such as lupus and MS with certain low vitamind D levels- not a cause but something that makes this worse perhaps- they checked my vit D levels and they were very low despite a good dietary intake- it seems many of us are being too good with the slip slop slap routine and are not getting enough sun exposure to activate the vit D ( and then absorb calcim) so i was told to have 15 mins sun exposure daily without sunscreen but i know other needed IV infusion to bring levels bag to normal- i may be worth asking your boss about if you have not heard about it

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8 years 2 months ago #14767 by grappers
Replied by grappers on topic Will any doctor help
Kebsa Vitamin D has a lot of issues surrounding it at the moment, they are finding babies are being born with the deficiency and are linking this to autism and food allergies, I have no vitamin D and have to take supplements, If I stood in the sun for 15 Min I would burn like a beetroot so have no choice but slip, slop and slap. I get my supplement from a compound chemist as a powder form, just add water in a teaspoon to make a paste, and still it only just registers, they blame medication.

Sassy I will post a nice Beetroot and baby spinach with walnuts and goat cheese salad recipe for you in the food thread in the next couple of days, a nice change to cabbage in coleslaw is kahl rabi and if you like kale I have a kale salad recipe.

Don

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8 years 2 months ago #14770 by kebsa
Replied by kebsa on topic Will any doctor help
sassy you are right to be cautious about just swallowing multivitamins, vitamins are divided into 2 basic groups- some that are fat soluble and the others are not they are water soluble from memory. The fat soluble ones are the ones that you need to be cautious of as your body will store them regardless of wether you need them or not and as you rightly say, that can be bad- vitamin A for women (especially if they are trying to get pregnant) is an issue thats why they have special formulations for women and then for women trying to get pregnant- high levels of vit A can affect the foetus but can't remember the effects- ADEK are all fat soluble out of the more common ones, the others that are not fat soluble your body can handle by peeing out if you have enough already-some of the B group vitamins are the ones that turn our your pee that really fluorescent yellow!! i can remember when there was a bit of a fad for taking super quantities of vitamin C - claims of all sorts of health benefits- one of the Doctors i worked with responded that all it would do is give you more expensive pee and he personal preferred to have his spare change in his pocket, not dissolved in his blaldder!

as for the crunchy iceberg recipes, not much help- i would love a nice crunchy salad or salad sandwich but i have something called oesophageal dysmotility syndrome- does not contract to push food along as well as it should- i had minor surgery that improved it a bit but certain textures are still problems- most raw vegetables, steak or meats that are dense and dry- i have mainly mince meats, braises etc so winter is easier for me but there are many fantastic web sites to get recipes- can't remember the name of the one i have used quite a bit at the moment- but i like it because if you cannot find something you want- you can put a request for help and then someone will hopefully come up with something suitable- if i remember i will let you know

Grappers, you are more like some of the other MS' ers i know- they have to use that soluble stuff too. I am sun sensitive- typical blonde hair, blue eyes and fair skin but he told me that the 15 mins could bee late afternoon or early morning to avoid the times when the UV ratings are highest and hat works ok for me- i like the evening sun- i used to love going down to the beach around 7pm on a hot day- lovely feeling - can't do that anymore- i would just get my trusty wheels bogged up to the axles!!.

you are right about there being a lot of issues about vit D- i heard about the autism link. There is interesting stuff with MS, they have known for a long time that he incidence of MS is highest in countries furthest from the equator, but its gets more specific- a persons risk is higher if they lived in such a country as a kid- if they move closer to the equator before adolescence it is meant to reduce you risk but it you leave it till adult hood it remains higher as if you were still in your original country! That made them start look into vitamin D. I was born in the UK and came to Australia at 11. Scotland and Norway are reported to have the highest incidence!

don't know what the temp actually is today but its very overcast, bright and glarey! but the worst thing is that its not just hot its humid as well- they are still predicting 38 for Monday- i stopped looking when i saw that! i have got to do my shopping but i will leave it til this evening (late night shopping)

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8 years 2 months ago #14776 by Mary
Replied by Mary on topic Will any doctor help
That's bad luck Sassy! I think that doctors often act that way when they don't really know what to do. Unfortunately the only option that you have is to try others out until you find a really good supportive one. The important thing is that they believe you; and they are sometimes hard to find.

I have one who is not bad on the whole. However, she doesn't have the grasp of chronic pain that she thinks she does, but she does have a few patients with CP and therefore she is reasonable. The only thing is that she tends to be a bit overbearing and I sometimes feel that the friendliness is "fake". I haven't yet been able to rake up the energy to try someone else. It gets too hard doesn't it? The thought of starting over is overwhelming!!

I hope you can find someone who is really supportive.

Mary

Not every day is a good day, but there is good in every day.

"“It’s delightful when your imaginations come true, isn’t it?” ― L.M. Montgomery, Anne of Green Gables

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8 years 2 months ago #14777 by grappers
Replied by grappers on topic Will any doctor help
Sassy I have great doctors they don't claim to know what is best for treating CP, when I first had my accident and it was clear the operations did not work, in conjunction with my neuro they made the decision to refer me to the pain unit, they then followed their recommendations into pain control and that leaves them to treat the rest of my ailments which they do have knowledge in treating as well as working with my heart specialist.
I have moved out of the area where this clinic practices, we have tried a few close by, but decided the travel is well worth the satisfaction in having doctors who care.

Don

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