CRPS and My Virtual World

More
6 years 5 months ago #20275 by grappers
Replied by grappers on topic CRPS and My Virtual World
Hi Rosie,
I recently had an appointment with my pain specialist, it was decided last visit 6 months ago my meds would not be changed until my shoulder operation was completed, so this time the change of meds was discussed, we are going back over old medications they had trialled in the past as the one I am currently on has been the only one that I could tolerate.
He is putting down the back spasms and pain due to be on one opiate for so long, as new studies point towards this conclusion, so a plan has been drawn up for my GP to put into action, they want to trial MsContin again, get the levels built up in my system before reducing my old meds, if that one causes side effects again, next jurnista, hopefully I can tolerate the first one, don't feel like going through the whole trial process over again, some of the side effects are worse than dealing with the pain, some cause more pain with side effects, but they say I have to try, if all else fails they will put me back on the original one again.
The most interesting conversation came when I told him my shoulder didn't go like expected, damn thing has more pain than before the operation, he said once the nervous system get over sensitised it affects all parts of the body, and senses, so apart from feeling pain anywhere, taste, smell, sound, touch, certain foods, creams, ointments, sprays, all these can have unwanted problems because of it, not everyone will have all of these problems but a select few do, we are put into the sensitive bunny category as he told me, he admitted they know little when it comes to dealing with pain, and even less when the nervous system gets over sensitised.
Anti-epileptics are out, they know that they change my personality as does antidepressants of any sort, so it is just finding a pain killer to replace the one I am on, and with as little side effects as possible.

Don

Please Log in or Create an account to join the conversation.

More
6 years 5 months ago #20276 by Johnno
Replied by Johnno on topic CRPS and My Virtual World
I discussed this with my wife and I am thinking of applying for the disability pension , I currently do four days a week and by the end of the week I am left in a screaming heap.
I just don't know where to start , can it be done online , do you need a doctors certificate how much disability do they call disabled ?
Is pain recognised as a debilitating disability especially if you aren't on pain blockers , do they take into consideration if you weren't on pain blockers what sort of blubbering mess you would be .

as long as I wake up alive I'm happy
Because it could be worse

Please Log in or Create an account to join the conversation.

More
6 years 5 months ago #20277 by Johnno
Replied by Johnno on topic CRPS and My Virtual World
I am currently on 300mg Lyrica morning and night without that the Post Herpatic Neuralgia would send me back to the black door as it is when they start to run to the end of the day I know it wow do I know it .

as long as I wake up alive I'm happy
Because it could be worse

Please Log in or Create an account to join the conversation.

  • Josie
  • Topic Author
  • Offline
  • Expert Boarder
  • Expert Boarder
More
6 years 5 months ago #20278 by Josie
Replied by Josie on topic CRPS and My Virtual World
Hi Rosie

Yep fingers crossed, medications can take a while to be effective from what I have read.
Disappointing that the pain clinic didn't offer more options but good you are trying another, pain management specialists certainly vary in their approaches and I changed to a new one last December and was offered Ketamine infusions with very good results, have you ever tried Ketamine? It's not for everyone and I was rather surprised that it was of so much benefit for my CRPS shooting pains, that plus my spinal cord stimulator are minor miracles for me as I did not get any relief what so ever from medications or any other treatments tried.

Let us know how you go with the second clinic etc and good luck.

Don I hope you can sort out your best medications options soon. Sensitive bunny category is an interesting description, I can relate to this!

Please Log in or Create an account to join the conversation.

More
6 years 5 months ago #20279 by Peter
Replied by Peter on topic CRPS and My Virtual World
Johnno, you have to go through your GP. There are forms to be filled in and reports to be done, which are then sent through to Centrelink.

I'm not sure on the requirement for the pension and how much disability you need to suffer, before they put you on it. I was put on it in 2002 and don't remember a thing of that time period.

Was in and out of hospital at the time suffering severe reactions to drugs. Somehow, I ended up on the pension. Obviously it was because I was not able to work and the doctor probably suggested it and I went along with it. I actually don't remember. I have around a 3 year period during that time where I hardly remember a thing, because my illness was bad, the drugs were bad and other things in my life were bad too. Brain doesn't want to go back there for some reason.

The best thing you can do is go talk to your GP. Find out what the criteria is and see if it fits your profile. If not, then you could try to cut your hours down a bit and apply to Centrelink for some assistance, so that you are not killing yourself.

Sometimes it's worth going into Centrelink to have a talk to them to see what options are available to you.


Peter

I wish the ring (this Chronic Pain) had never come to me. I wish none of this had happened. (Frodo Baggins)
So do all who live to see such times. But that is not for them to decide. All we have to decide, is what to do with the time that is given to us. (Gandalf the Grey)

Please Log in or Create an account to join the conversation.

  • Josie
  • Topic Author
  • Offline
  • Expert Boarder
  • Expert Boarder
More
6 years 5 months ago #20280 by Josie
Replied by Josie on topic CRPS and My Virtual World
Hi Johnno

I am on a disability pension, I recall there were multiple page questions/ forms to fill out and sections that my doctor had to complete, then I had an interview. I could no longer walk or drive and had had to leave a good job two years prior to the application due to my CRPS. The questions included things like did I need help to dress, shower etc which I did. Also my CRPS was not going to get better so my GP's note were able to verify the permanence of my pain and disability! great to see it in writing-LOL!. I found Centrelink very helpful and the interviewer was very understanding although I was unsure about doing this interview because chronic pain is such a hard thing to explain to most people and CRPS even harder. I am allowed to work I think it is 16 hours a week but of course that is not possible for me but it might work in with your needs.

I also suggest that you consider talking to Centrelink to get more information, they have information booklets which you may already have seen.

Josie

Please Log in or Create an account to join the conversation.

Moderators: Johnnojo.m
Time to create page: 0.082 seconds

About

All demo content is for sample purposes only, to represent a live site.

Note: Galatea is built on the latest version of the Gantry 5 Framework.