CRPS and My Virtual World

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6 years 5 months ago #20288 by Johnno
Replied by Johnno on topic CRPS and My Virtual World
Hi Rosie ,

I'm only on
Tramadol 100 mg 1 per night
Endep 75 mg nightly
Lyrica 300 mg twice a day
Zoloft 100 mg mornings
Panadiene forte up to 6 per day _ morning , mid morning and early afternoon
Xanax only when I am heavily stressed(so 50 last about two years)
Panadiene osteo if required and pain levels don't require forte
So the pill price is fairly high per month
If they only gave me a health care card for medication it would help

as long as I wake up alive I'm happy
Because it could be worse

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6 years 5 months ago #20289 by Rosie
Replied by Rosie on topic CRPS and My Virtual World
Hi Johnno,
I think with centrelink, they do ask for a list of your current medications, but I think they are more looking at your condition. They look at what condition you have, if it's permanent, and how it affects your day to day activities, among other things. It would be worth discussing this with your GP or specialist, as it sounds like you could benefit from some assistance. As I mentioned, when paying for medications, having a concession card really helps.
Hope my information helps,
Best wishes,
Rosie

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6 years 5 months ago #20290 by grappers
Replied by grappers on topic CRPS and My Virtual World
Hi Johnno,
Your GP will list current medications and strength, but these play little part in getting an approval, as Josie pointed out they are looking for how much your injury impacts on your ability to work and your daily activities, they will also want to assess how much strain it also takes on you mentally and whether it is permanent, if your family has to help you around the house or helping with personal hygiene and getting dressed or tying your shoelaces, the more areas that can be ticked off on the assessment tables the better.
Having a healthcare cards helps a hell of a lot when you do get the pension, with bulk billing at the GP, and of course cheaper scripts, there is also a safety net on scripts once you have spent $360 the rest are free for the calendar year, it helps in every 28 day period between my wife and I we have 24 scripts filled, and then there are others which only get done every 3 months and doesn't count for illnesses needing antibiotics or anything to treat things like constipation caused by meds, which you can ask on script to save paying full price, like movicol,( for those who don't know in now comes in chocolate), and suppositories, they all add up, we usually hit it in under six months until pbs covered scripts are free, non pbs still attract their normal charges no discount for concession card holders.

Don

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6 years 3 months ago #20727 by Kim
Replied by Kim on topic CRPS and My Virtual World
So hello girls and guys im back but not sure for how long,after all this i have gone threw work cover has put me into a pain clinic.
To me it isn't helping alot of it is to me in so many words silly. but that's not saying it might not help others.
I did how ever get i guess closure.On what pain medications i cant have any more. I would like to share 2 things from the pain clinic to see if it helps anyone here that might find it helpful.

The other is seeing a doctor named Dr Christian Rowan he is the top in his field for pain medication im sure you would need a referral from you local GP.
So just an update from me the crps is a constant battle,my mental health has not gotten any better,and to top it off Chronic carpel tunnel in both
wrists,i had a nerve conduction study done and omg how it hurt,i find out the results today im hoping.
I wish you all well

kim

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6 years 3 months ago #20728 by Peter
Replied by Peter on topic CRPS and My Virtual World
Hi Kim,

Yes there are some pain clinics around that may not give out the best information or to be more precise, the information may not be of much use to some people, because of the particular health issue they have. And we all know that CRPS is a very hard health problem to deal with. I don't think they have a handle on that one yet, at least as much as they do with chronic pain.

I really feel for you, because too many CRPS sufferers fall through the cracks, because of a lack of understanding of this condition. I have heard of some who have done really well, but too many don't. So, all I can say is that I wish you all the best and hope you find a great doctor/specialist who can help you.

As for your conduction test. Tell me, do they still use the needles in your fingers?

I had both my wrists operated on many years ago in the 1990s, but when I had the conduction test, I was horrified when I watched this specialist put needles up the very tips of my fingers. Man o man did that hurt! Even thinking about it now sends shudders up my spine.

I do hope they have found a better way to do these tests.


Peter

I wish the ring (this Chronic Pain) had never come to me. I wish none of this had happened. (Frodo Baggins)
So do all who live to see such times. But that is not for them to decide. All we have to decide, is what to do with the time that is given to us. (Gandalf the Grey)
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6 years 3 months ago - 6 years 3 months ago #20729 by Kim
Replied by Kim on topic CRPS and My Virtual World
Hi peter yes they did and like im not a wuss but o man it made me cry i had 4 needles in each hand and arm.
with the pain clinic peter im just unsure how to take it i mean stuff like mindfulness isnt me i cant bring myself from being so worked up in pain to being relaxed and so on the other thing that got to me, remember ages ago i posted about lyrica ? they put me back on it and i was hospitalized this time for 5 days because of it but i was on a lesser dose i had a major reaction my face blew up to the point i could not see out of my eyes stomach rash like i had menacocal and i couldn't swallow.
Last edit: 6 years 3 months ago by Kim.

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