Need Pain relief very soon

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7 years 6 months ago #18088 by harper1
Need Pain relief very soon was created by harper1
Hi there to all :-)

I am new to this forum and just wanted to share my story with you .

My pain started about 10 years ago went to many specialist before I even knew what was wrong, And of course give you a different opinion ..by this stage I was dealing with neurological pain in my left upper thigh and left foot also mega cramps in my calve and behind my left knee which woke me on a constant basis every night so painful sometimes I couldn't even move .
Well after seeing a Nero surgeon and having a massive buldging disc shaved in surgery , amazing finally some relief ,but unfortunately my story does not end there.

Here I am 10 years later in the worst pain I could ever imagine this time starting in my right hip ,was in the gym on the tread mill and the pain I was delivered was debilitating .

The things that were once simple become a massive struggle for me everyday is getting harder (pain wise) .
I have seen a physiotherapist that would not even touch me after seeing my scans recommended a few exercises even tho I had just finished explaining the pain exercise leaves me in....oh he did do the old reflex reaction time on my left leg and found out I have 0% reaction reflex : / .

I am currently waiting on x2 different specialists had a ct scan done not long ago and the results from that were
At L3-4 there is a bulge associated with small focus of calcification in the midline causes some indentation of the thermal sac. Canal stenosis At this level due disc bulge and ligamentum flava &facet joints.

At this L4-5 there is a annular bulging disc, at this L5-S1there is loss of disc height and a disc that is severely degenerative , there is gas seen within this disc there also is a left paracentral disc portrusion which impinges the traversing S1 nerve root in the lateral position .

Degenerative changes in the facet joints worse at this L4-5 and L5 S1 AND just another to throw in some canal stenosis .

I had a MRI done on Friday and was told that there now seems to be some more problems but have to wait till the 19 of Nov to go back to one of my specialist ... and above this all I still go to work !

I really don't know how I get Thu some days ... painkillers are fine for bandaid but can only use for a short time
This has really taken a toll on my everyday life I am really moody sad depressed and just in general don't want to share my company with people as I am to scared how I react due to what pain I am feeling at the time ... : (

I do not sleep well at night constant rolling / tossing from one side to the other which in turn does not give you a full nights sleep rest and feel like crap the next day .

Well that's my story, hopefully some relief will be coming my way soon .

Harper 1

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7 years 6 months ago - 7 years 6 months ago #18089 by Peter
Replied by Peter on topic Need Pain relief very soon
G'Day Harper.

Welcome to the Forum!
And thanks for your story. You certainly have a myriad of problems with your spine. Makes my problems seem small.

I do have a couple of questions:

Do you have a family who are supportive and able to help you out when you need it?
And have you ever been referred to a Multi-disciplinary Pain Clinic?'

These pain clinics are the new thing and are educating chronic pain sufferers with the latest techniques of self-management. If you haven't been yet, I strongly suggest you go to your GP and ask them to refer to the best one in your city/district. Educating yourself on how to live with moderate to severe pain, is the best and probably the only way forward from where you are. Indeed, it has been pretty much the only way forward for most of us.

You are right. Drugs are bandaids and not all that good even at the best of times. They almost all have side-effects and if they are good enough to take the pain away, they also leave you feeling and looking like a zombie!

Mate, I hope you find our forum of some help. It isn't all that busy right now, because many of our recent active members, must be feeling much better, because they are not posting much any more. We still have a few people posting every now and then. But I would encourage you to read as much as you can, because there is a lot of information here and also on our website.

Take care and remember to be kind to yourself and your family!


Peter

I wish the ring (this Chronic Pain) had never come to me. I wish none of this had happened. (Frodo Baggins)
So do all who live to see such times. But that is not for them to decide. All we have to decide, is what to do with the time that is given to us. (Gandalf the Grey)
Last edit: 7 years 6 months ago by Peter.

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7 years 6 months ago #18093 by Outlast
Replied by Outlast on topic Need Pain relief very soon
G'day harper. Interesting name you picked. Bit hard on yourself. Welcome.
The only thing I will add to Peter's input is this. Where possible keep your thinking and actions about your condition simple. I know that sounds vague and maybe doesn't make sense. But those of us in pain tend to clutter our heads with what ifs or should I be doing this etc. Until such time as you qualify as a neuro surgeon you are in their hands. Just be sure and comfortable that you trust those hands. I don't know what work you do but you just have to do whatever it takes to get through the working day. if that means painkillers then maybe you have no choice but take them. Do not overuse them. You can't be in the workplace in a state of considerable pain and anxiety that goes with it. You say painkillers are just a bandaid well use that bandaid at bedtime. Because one thing that all Forum members know is that no sleep or interrupted sleep is disasterous in your pain management. Doctor never mentioned Lyrica because of all that nerve involvement?
You withdrawing is classic pain and depression cycle but you know that. I think you should pay close attention to your ability to cope emotionally and ask for help with counselling and/or medication if needed. Do not let yourself slide into serious clinical depression. Take Peter's advice seriously. Outlast.

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7 years 6 months ago #18094 by Peter
Replied by Peter on topic Need Pain relief very soon
And I would add to what Outlast has said.

If you do feel the need for some Psych help, please do some research and ask a lot of questions!

You need to find someone in the psych industry who has some medical knowledge, especially about chronic pain. There is no use going to some generic psychologist, because they will be useless.

There is one lesson all us CP sufferers have had to learn and it is often times a bitter lesson. And that is that 'WE' have to take control of our own health situation, by doing the research, asking the questions and if necessary, demanding that someone take the appropriate action.

So I strongly advise you to take full responsibility and control of your health problems, because no one else is going to bother. This way, you will have a better outcome and shouldn't suffer too much from ignorant medical practitioners.

If you have any questions, just fire away and we will try to answer them if we can.


Peter

I wish the ring (this Chronic Pain) had never come to me. I wish none of this had happened. (Frodo Baggins)
So do all who live to see such times. But that is not for them to decide. All we have to decide, is what to do with the time that is given to us. (Gandalf the Grey)

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7 years 6 months ago - 7 years 6 months ago #18095 by Mary
Replied by Mary on topic Need Pain relief very soon
Hi Harper,

To add to what Peter has said; there is a lack of knowledge of the causes of chronic pain. There has been a lot of research conducted in the last 10 years and they have discovered that it is a disorder of the nervous system. This causes changes in the brain because of the continuous wrong "messages" that are being sent to it.

There are a lot of people who have spines that look exactly like yours but they don't have pain and they don't even know that their spine looks like that because they have never had an x-ray. My mother was a classic example of this. She had an x-ray for another reason and they said to her "how are you coping with your back?" She said her back was fine and they couldn't believe her. They thought she should be in all sorts of pain but she just said that it "got a bit tired if she stood up for too long".

So, unless there is a really good urgent medical reason to have surgery, it is no use having it. A good neurosurgeon should be able to tell you this. Then, just ignore what you are reading. My x-rays look like yours and I had lumbar surgery. My problems with neuropathic pain began after that - 9 years ago. I was also told that I needed immediate surgery on my neck but my neurosurgeon explained that I didn't and, at that point, I could have even been worse off. He will only operate if there is weakness in the arms or whatever. He says that he cannot cure neck pain and after the research I have done, I believe him! I don't have a lot of neck pain but i do get severe stinging and spasms from my neck to my knees. This is chronic pain and unfortunately at this point in time we don't have a cure for it.

The best thing to do is to manage it as best you can. That involves multidisciplinary treatment as the others have said. You can put your name on a waiting list for a pain clinic at a public hospital or you can find the best people you can who understand neuropathic pain and get your own little team together. A pain specialist, a psychologist who works with chronic pain, a physiotherapist who knows about neuropathic pain - because if he/she doesn't, you will end up worse. You also need a supportive GP. If you can manage this (I know it sounds daunting) then you are on the right track.

I think that you will find some good links in our section called "Helpful Links". The Online Pain Management Course run my Macquarie University may interest you. We have had several people from here take that course and they all speak very highly of it.

Sorry for the length of this post :)

Mary

Not every day is a good day, but there is good in every day.

"“It’s delightful when your imaginations come true, isn’t it?” ― L.M. Montgomery, Anne of Green Gables
Last edit: 7 years 6 months ago by Mary.

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7 years 6 months ago #18096 by harper1
Replied by harper1 on topic Need Pain relief very soon
Thanks guys for your responses .

I am currently on the waiting list to see a highly recommended specialist but thought in the mean time would get the MRI my other specialist wanted me to get done, which has revieled more problems so I guess when i go back to him on the 19th I will have more of a idea what's on the cards next.

As for pain management I do take pain medication as needed but I still tend to wake during the night no matter what .


harper 1

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