Recently diagnosed

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7 years 2 months ago #19182 by charleejadexx
Recently diagnosed was created by charleejadexx
Hello my name is charlee, Im 23 years old and been suffering from CP for 2 years now which isnt long for some people (which i admire each and everyones strength)

My pain started after a car accident in which a guy drove straight in front of my car whilst i was doing 70km/hr and basically came to a standstill so as you can imagine whiplash was pretty horrible.. Nothing else was injured so i am thankful for however now i sometimes wish i could of just broken a bone instead as would of healed faster..
Being an apprentice i found it extremely hard to pay for treatment an with TAC not being helpful an my work not helping out i went back to work wayyy to soon..

So basically now since the accident i have suffered continuous muscle spasms to the point i cannot move.
However today i got to see a muscular skeletal specialist who diagnosed me with chronic myofachial pain with central sensitisation (unsure of spelling) so basically my central nervous system is sending pain signals that isn't really there and also with a bad posture caused by the accident also save to say i'm not having a fun time..

Also to add salt to the wound i am also allergic a lot of pain killers so i'm stuck with panadol etc

So now i'm being sent to Dr terence lim who will then assess if i am able to participate in rehab at N.E.R.C which fingers crossed i get into

Most days i feel hopeless and didn't know what was going on an being only 23 i know then when on a bad day the elderly walking faster an more upright then i am is not right.

Has anyone else been diagnosed with the same thing? Or been and seen Dr lim or been to this rehab facility? Just trying to find out more and would be great to talk to others in the same situation as i'm trying to get my head around it all and whilst i'm glad to have a diagnoses its all a lot to take in

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7 years 2 months ago #19183 by Mary
Replied by Mary on topic Recently diagnosed
Hello Charlee and welcome.

You have pretty much summed up the reason you are in pain. Chronic Pains is exactly as you describe it; pain that persists long after the healing process has taken place.

I hope that you get into the rehab. facility and you get some treatment that will help you. Do you know if they also teach you some pain management strategies at NERC? It would be great if they did, along with everything else.

Good luck, keep us posted as to how it all goes.

Mary

Not every day is a good day, but there is good in every day.

"“It’s delightful when your imaginations come true, isn’t it?” ― L.M. Montgomery, Anne of Green Gables

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7 years 2 months ago #19186 by charleejadexx
Replied by charleejadexx on topic Recently diagnosed
I'm not sure as of yet what they'll teach me but I'm being sent to this one as apparently they don't just work on rehabilitation they work with your central nervous system too to stop it sending signals. The muscular skeletal specialist found it quite strange that instead of sending to the site of the injury that it's sending all around my body even to my calves etc even when they were never injured. For example il be standing there and get a huge spans will go down my leg or my arms or even chest.

Does anyone else get this all over their bodies? From things I've read on the internet most pain for people seems localised to come area ie back or neck etc but not all over

I just want it to stop as I feel like I'm surviving in life not thriving which we all should be doing

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7 years 2 months ago #19187 by Mary
Replied by Mary on topic Recently diagnosed
Hi Charlee,

Yes, it is quite common for people with CP to have it spread to other areas. Any small issue that you may have had that has been under your radar can also become an issue. It's as though the nervous system has a mind of its own!

Mary

Not every day is a good day, but there is good in every day.

"“It’s delightful when your imaginations come true, isn’t it?” ― L.M. Montgomery, Anne of Green Gables

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7 years 2 months ago #19188 by grappers
Replied by grappers on topic Recently diagnosed
Hello Charlee,
To answer your question when you get an over sensitised nervous system, where your injury originally was may not be the site affected, the nervous system is firing nerve endings off in any part of the body, hence why you get pain anywhere other than the original injury site, for me I have back problems, yet my left leg is numb, the foot droops and the left heel is over sensitive to touch, this is now moving to my right side as well, I also get terrible spasms from my back which affect my legs causing them to give way.
People with shoulder problems, one I have just had surgery for, result in neck and headache problems.
Once nerves are damaged pain is almost never limited to the actual injury site, which a bummer as it is hard to treat, most success has been with the drugs in the antispasmodics like Lyrica, but for some like myself these drug are not suitable as are most to treat pain.
If they are doing a pain management course ask if it is based on the ADAPT system, mine I did through the public system over 9 weeks every friday, it covers all the feeling one goes through like guilt, acceptance, deals with sleep problems although I found no course or sleep clinic can help another story, you will learn a whole lot of tools in learning how to live and work with CP, ones that try to get you off all medication I would question, the idea is to get a balance between self prevention as well as medical help, some people are able to cut down on medication mainly because they are not going through the boom and bust cycle, some have no choice but to stay or increase what they are taking, and that should be up to your treating pain specialist to decide with your input on how you are feeling once completing the course.
Just to let you know my pain management now consists of a spinal stimulator and I still take the same one and only pain med, at the same strength before the implant, the combination of both has brought my pain levels down to the point where I can get some sleep at night, before it was 4 days no sleep 4hrs sleep wake in more pain, this went on for over 3 years, the reason I said not enough taught or studied into sleep problems.

Don

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7 years 2 months ago #19189 by charleejadexx
Replied by charleejadexx on topic Recently diagnosed
Oh ok yeah it seems that way!! Still learning about it all but least now I know what to search for ..
Yeah where it's been sent to I've never had a problem before even little ones so I dunno he did say if I'd had other injuries it can spread but yeah it's all so complicated

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