Fibromyalgia

  • JoT33
  • JoT33's Avatar Topic Author
  • Offline
  • Junior Boarder
  • Junior Boarder
More
6 years 9 months ago #19240 by JoT33
Fibromyalgia was created by JoT33
OK so from the discussion about Lyrica (a drug I take for nerve pain) I have some questions about some of the side effects &/or symptoms I seem to suffer, and wonder if anyone can enlighten me ahead of my GP appointment next week. I'd rather talk to those who know, rather than rely on Dr Google in the meantime. ;)

I have the aforementioned nerve pain, mainly in my right foot, from a previous surgically-induced paralysis (L4/L5 pressure damage and subsequent drop foot and numbness/dead nerves), I also have chronic ankle sprain (as a result of falling too many times while paralysed), plus pre-existing back problems (disc bulge, spondylolisthesis, + bilateral pars defect) with the added bonus of sciatica, I also have chronic fatigue (no surprise with chronic pain), plus costochondritis, and what seems to be Brain Fog.

Now I asked whether this last one was possibly related to the Lyrica as others have mentioned memory issues whilst on it. But I was reminded that this is also a symptom of Fibromyalgia (as is the costochondritis and CF). So to those who have it, how were you diagnosed? What do you do about it, aside from the usual drug combo for the other symptoms?

T.I.A,
JoT

Please Log in or Create an account to join the conversation.

More
6 years 9 months ago #19241 by Mary
Replied by Mary on topic Fibromyalgia
I don't have Fibro Jo, but it is usually diagnosed by a Rheumatologist. The diagnosis can be tricky and they have the most experience with it.

They diagnose by finding designated sore pressure points along with your history etc. However, I read an article recently that stated the are tending to lean away from the pressure points a bit now. I can't quite remember the details but they take a lot of other things into consideration too.

Mary

Not every day is a good day, but there is good in every day.

"“It’s delightful when your imaginations come true, isn’t it?” ― L.M. Montgomery, Anne of Green Gables
The following user(s) said Thank You: JoT33

Please Log in or Create an account to join the conversation.

  • Carpediem
  • Visitor
  • Visitor
6 years 9 months ago #19252 by Carpediem
Replied by Carpediem on topic Fibromyalgia
Being diagnosed with Fibro is a tough one I was told i had Fibromyalgia by my pelvic pain specialist within a minute of just explaining my symptoms so i took that with a grain of salt then when i went and saw my pain specialist at the pain clinic he assessed me and said he wasn't 100% sure on the Fibro diagnosis but he is 100% i have nervous system sensitisation so i am going with that one but i think they might be one in the same thing not sure. My naturopath told me Fibromyalgia is just a blanket term used when they don't really understand what is going......i have been told being diagnosed with Fibromyalgia is via a process of exclusion.

Personally for me i like to have an understanding on what is physically going on with my body and the central nervous system sensitisation provides me with that explanation.

I am currently on no medication because i am very sensitive to them always have been i don't have brain fog and my sleep is ok but i do know when i tried the cymbalta (different drug to lyrica but used for the same purpose it's a antidepressant that is meant to help nerve pain also) i had horrible brain fog.

Please Log in or Create an account to join the conversation.

More
6 years 8 months ago #19451 by Mickos
Replied by Mickos on topic Fibromyalgia
I also have fibro what was diagnosed from my pain specialist in a few secs what was very similar to how carpediem was diagnosed I am on the maximum dose of lyrical what is 600mg a day for it it seams to help

Please Log in or Create an account to join the conversation.

More
6 years 4 months ago #20619 by MichelleO
Replied by MichelleO on topic Fibromyalgia
Hii
Recently diagnosed with fibro although not quite confident with the diagnosis. I have pain clinic appointment on Monday and would like to know what to expect. It's a private clinic and will be costing me $300! I'm a single mum of 1 and have been off work since Easter so I hope it's worth it!

Please Log in or Create an account to join the conversation.

More
6 years 4 months ago #20624 by Mary
Replied by Mary on topic Fibromyalgia
Hi Michelle,

There are pain clinics and pain clinics. The best ones are the multidisciplinary pain clinics that are located in many of the major public hospitals. However, there are usually long waiting lists.

The current research indicates that a multidisciplinary pain clinic is the best way we have right now to manage chronic pain. They should offer you a pain specialist to diagnose and help with medication, a psychologist (vital) to help with relaxation, the fear that we all have and show you ways that you can still do things that you would like to do. Also a physiotherapist who can work out some gentle exercises to keep you mobile so you don't suffer from worsening pain through inactivity.

That is the basis of a pain clinic. I accessed all those things separately because it was a few years ago and I couldn't get into the pain clinic that I wanted to here. I found all of the people were integral to me regaining the life that I felt I had lost. Be wary of a pain clinic that just offers to stick you with needles at great financial cost and nothing more.

Good luck again and I hope it goes well!

Mary

Not every day is a good day, but there is good in every day.

"“It’s delightful when your imaginations come true, isn’t it?” ― L.M. Montgomery, Anne of Green Gables

Please Log in or Create an account to join the conversation.

Moderators: Johnnojo.m
Time to create page: 0.107 seconds

About

All demo content is for sample purposes only, to represent a live site.

Note: Galatea is built on the latest version of the Gantry 5 Framework.