Your opinion on my condition and treatment

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7 years 4 weeks ago #19881 by Kam1
Hi everybody, I just wanted some opinions. I have noticed a lot of you guys have been dealing with CP for along time and or are very educated on the subject. I know that every one is effected different, but you still may be able to chip in your 2cents.

PREVIOUS LIFE: I worked a rotating roster of 12 hour shifts, dedicated body builder of 12 years and very busy person inbetween work, gym and socialising.

THS STORY: 18 Months ago I was driving to work in the morning, minding my own business stationary at the traffic lights waiting for it to go green. Then a speeding truck coming from behind somehow managed to not see me or the intersection.. Somehow? Therefor hitting me at approx 90kph without braking or skidding just direct impact, squashing me between the SUV in front of me.
The accident itself was horrendous, I was trapped in the car unable to move, in and out of consciousness until emergency services came and cut me out. My legs were trapped under the dash and the rest of me was in the back seat as the drivers seat snapped in a few places.

HOSPITALISED: I was in hospital for only 3 days, I couldn't walk I was wheel chair bound. I am very stubborn and I didn't like being at the hospital so against DR's orders I decided that I would be more comfortable at home. I went home, not realising that the only reason why I felt ok to leave was because I was so drugged up! By the the time I got home and settled in I was back in hospital again. Overwhelmed the pain was unbearable.

THE DAMAGE: 2 minor disc protrusions, and a couple other things I can't remember.

THE AFTERMATH: I was bed written for a couple months, when I finally started feeling being able to walk around the house I basically did it at the pace of a dieing turtle for quiet sometime. As time went on I gradually started feeling better, still couldn't walk further then the distance of bed to fridge to couch lol.
I started seeing physios about 2 months after the accident, a psychologist about 2 months after and was doing my own hydro therapy. In the begging I was expecting to return to my full time duties at work within 4 months max. As time went on and I didn't get better I started Ito realise the severity of my ongoing problems.
I started going to a pain management clinic about 7 months (approx) after the accident. Didn't help much! So my team of specialists decided that I would benefit most from a inpatient program. So while we applied for that I had to stop doing my current treatment so I would get the approval for the inpatient program.

NOW: (has been 18 months since accident) It has taken almost 6 months for my insurance to come to a decision with whether they will fund my program or not, (haven't had any treatment since making matters a lot worse) I should hear from them about the decision soon. But they have finally agreed to allow me more treatment for the time being. Basically it's 5 days a week, consists of hydrotherapy, physio sessions, gym work, walking and psychology sessions.

MY CONDITION: I have chronic pains in my lower back, mild disc protrusion, mid disc degeneration, arthritis, shooting pain all over my body, numbness in the glutes and down my legs at almost all times, constant headaches, depression, p.t.s.d, and etc etc.



MY QUESTION!!! Do you think that I will benefit from a 4 week intense program as a inpatient at the pain management centre? Should I try something else?? What is your opinion on what may be good options?

Sorry for the long read, any opinions will be very much appreciated.
Thank you!

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7 years 4 weeks ago #19882 by Mary
Hi Kam 1,

For what it's worth - Yes! If you don't try you will never know. I don't have any experience with 4 week inpatient programs but i imagine that it could be really beneficial. You need to go there with an open mind and embrace all the program. It won't "cure" you, but it certainly has a good chance of vastly improving your quality of life. It may also be able to give you some strategies as to how to leave the house etc.

I have been at a point where I was housebound and it tends to make pain levels much worse as well as being quite depressing. I was shown how it was possible for me to take part in activities outside the house and I am now doing things that I thought would not be possible a few years ago.

Give it a try and see how it goes. Give it all you have got and remember that there will be other people there too and that will be good. You will have some people to talk too :)

Mary

Not every day is a good day, but there is good in every day.

"“It’s delightful when your imaginations come true, isn’t it?” ― L.M. Montgomery, Anne of Green Gables
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7 years 4 weeks ago #19883 by grappers
Replied by grappers on topic Your opinion on my condition and treatment
Hi Kam and welcome,
Well that depends on what this 4 week stay will offer, if they are doing a pain management course included then yes that will help you with your life long struggle with CP, is this 4 week stay taking a multidisciplinary course of action. While Physio helps with CP, at the same time it should not cause more discomfort, the same with exercise, it has to be within your limits, the saying no pain no gain does not apply when you have CP, if it causes pain then you have a problem, I have been a CPer for over 8 years now with lower back and nerve problems and still to this day exercise and physio is limited, hydro I enjoy and joined a gym to alleviate the costs as they have a full size Hydro pool going to 6 feet deep, even in here you have to watch what you do, as you can overdo exercises very easily and don't discover until you get out. Psychiatrists and Psychologists are always going to be a good idea for handling CP, but make sure these are part of the pain clinic as they understand the dynamics of CP and that is all they deal in.
There are some pain clinic which are questionable in their approach, as their only goal is to use exercise as a means to controlling CP and doing away with medication, a good pain clinic uses a balance of both to get the best outcome and work closely with your GP, so research the clinic to find out how and what they expect to achieve, a good pain clinic should be multidisciplinary and work around the ADAPT system or the STEPS program.

Don
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7 years 4 weeks ago #19885 by Kam1
Thanks for the input guys, I have no idea what the program will consist of as we haven't discussed the inns and outs of it yet, as for other people thee to speak to... From what I have seen I am by far the youngest in there, I'm in my mid 20s whilst the rest appear to be elderly and quiet fragile lol. Should be interesting.

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7 years 4 weeks ago #19887 by gemini
Replied by gemini on topic Your opinion on my condition and treatment
G*day Kam & welcome!
I was a 45 year old woman when I did an Inpatient 3 Week Intensive Pain Clinic run by Dr Bill Donnolly (now involved with Wesley"s I believe).It was very fullon,venue was Private Hospital in Coffs Harbour.There was only 5 of us,I was the only female & the oldest.
It included everything from diet,to Gym,to Hydro,to Long walks....also videos,group counscelling,also one on one.They had more staff than patients.Pharmacology had a session even.It gave me alot of insight as to what the future would hold & tools to tackle life with!
Go for it,you have nothing to lose,and everything to gain. Good luck, Deb
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7 years 4 weeks ago #19891 by Kam1
Thank you for your input deb!

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