Unexplained Chronic pain

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5 years 3 months ago #23001 by longterm_sufferer
Unexplained Chronic pain was created by longterm_sufferer
Hi,
I have found this forum when I am searching about the pain management clinics. I am suffering from an unexplained chronic low back pain since 6 years and unable to see a light at the end of the tunnel.

After consulting many specialists (Ortho, Sports, Rheumatologist, Sports and musculoskeletal) over the last 6 years I am confused, depressed and frustrated. I am 35 years old female and my low back pain started soon after my pregnancy when I was 26 years old. I could not get up from the sitting position and the problem has gone on its own within 2 months. It started after 2 years and due to this I could not walk and was bed ridden. MRI has shown 2 bulges at my C4/C5 and C5/S1. After 3 months of physio I had some relief but never became normal. Subsequent MRIs are all came back negative (no bulges this time) but still I was unable to walk or sit or stand for more than 10 minutes.

After many years of physios, cortisones in my SIJ the final conclusion from the medical fraternity was that my pain is generating in my SIJ due to the laxity of my ligaments. This conclusion was made as the MRI did not show any disc related problems and they reckon this could be the problem. I have undergone prolotherapy for the ligaments and this gave a little relief but again did not completely make me feel normal.

I am taking Lyreca 75 mg twice daily for my nerve pain and the pain medication helped me but the moment I stop taking the medicine the pain is worse.

The doctor asked me to do back exercises and this was the treatment plan that was given to me. Even after working on that exercise regime for more than a year, I am still not recovered. This pain is severely affecting my life and my family.

I would be interested to know if anyone has experienced similar problem and if yes, any pointers in how they solved the problem.

Also I would like to consult a best pain specialist who could re-evaluate me and suggest a treatment option that would make me feel normal again .

I live in Sydney and would appreciate if you can suggest a pain specialist who are experienced in treating unexplained low back pain.

I am sorry for writing a long message.
Regards
Pran

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5 years 3 months ago #23002 by illeatyu
Replied by illeatyu on topic Unexplained Chronic pain
Pran,

Welcome to the board.

Sorry just a clarification first just so I know where I am talking about I think you mean L4/L5 and L5/S1 as in Lumbar or lower back, all of my nerve damage is in L5/S1 and I have had chronic pain for almost 26 years now.

Now we are not doctors and so cannot recommend you do anything, what we can do is tell you what works for us and after you talk to your GP you can decide what if anything is of use to you.

I also live in Sydney PM me if you want details, and I would try to get into the pain clinic at Westmead Hospital, they will evaluate you and may well have some solutions for you, I would do this before I saw a pain specialist as there is one in the clinic.

I as well as almost half this board take Lyrica or Gabapentin for Nerve pain, and the fact that it works would suggest that like me your Vertebrae have damaged the Sciatic nerve, when you say pain can you please be more specific, is it in both legs, thighs, calves, burning heals, is the pain sharp, dull, aching the more we know the more we can suggest what to try on non medical grounds and what to talk to your GP about.

Illeatyu

“All the elements in your body were forged many, many millions of years ago, in the heart of a far away star that exploded and died. That explosion scattered those elements across the desolations of deep space. And came together to form you, you are unique in the universe.

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5 years 3 months ago #23003 by longterm_sufferer
Replied by longterm_sufferer on topic Unexplained Chronic pain
Hi Illeatyu,
Thanks for the quick response.

Sorry my bad, it is lumbar L4/L5 and L5/S1.
The pain comes in both legs. The pain is severe in left but the pain also started coming in my right leg as well since 3 years. But it is never in both legs at the same time.

The pain is like an ache sensation and goes until my thighs on the sides. But it won't go below that. When the pain is very severe, then I feel a sharp pain in the bone just above my hip. I sometimes get the burning sensation in my heels but not all the time. The pain becomes more severe if I stand at one place for more than 15 minutes or walk for more than 10 minutes. I am also unable to do any of the house hold chores e.g cooking which aggravates my pain. I was not able to sit for longer times (more than 20 mins) but now with the recent exercise regime I am able to sit for longer durations.

I have started sitting for longer hours as standing is becoming a problem and now due to the prolonged sitting with a wrong posture and I have developed a facet joint syndrome at my cervical spine (c4).

Sorry for listing my symptoms and thanks for asking.

I know that the members in the forum are not doctors, but are the symptoms listed out by me could be due to the sciatic nerve damage? What tests did confirm for you that you had a sciatic nerve damage. I had also undergone a nerve test 2 years ago and it came back normal study (surprisingly it showed an CMAP amplitude asymmetry in the right tibial nerve compared to left. My problem is mostly on the left).
Thanks
Pran.

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5 years 3 months ago #23012 by illeatyu
Replied by illeatyu on topic Unexplained Chronic pain
Hi Pran,

I have all of what you have including the heal pain and restrictions on standing and sitting.

We worked out it was nerve damage because of the narrowing of the nerve channel on both sides and from the type and location of the revered pain, also only nerve pain is affected by Lyrica and Gabapentin so if it had been muscular then it would have stayed the same not gotten better.

Please don't apologize for listing your symptoms, that helps us help you because those of us who have similar conditions can offer help and advice.

Illeatyu

“All the elements in your body were forged many, many millions of years ago, in the heart of a far away star that exploded and died. That explosion scattered those elements across the desolations of deep space. And came together to form you, you are unique in the universe.

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5 years 3 months ago #23015 by longterm_sufferer
Replied by longterm_sufferer on topic Unexplained Chronic pain
Hi Illeatyu,
Sorry to hear that you are facing similar problems. How was your condition diagnosed? Has it been identified by any diagnostic tests?

Has your pain reduced and is there a long term solution prescribed by the doctors?
Regards
Pran

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5 years 3 months ago #23016 by grappers
Replied by grappers on topic Unexplained Chronic pain
Hi Pran,
I am also a sciatic nerve pain sufferer, mine was a result of a motorbike accident which damaged 2 vertebrae and discs, first op was to repair the damage, unfortunately as a result a bone spur grew into my sciatic nerve causing permanent damage, I get constant pain that radiates from my back, through the buttock, down the left leg to my toes, I have no sense of feeling in one leg from the knee down, foot droop in the same leg, and massive muscle wastage, that ankle also suffers edema, so have to wear compression stockings to limit the fluid build up.
Medication has been fruitless, my system can not tolerate drugs bar one, an opiate, but this doesn't help with the nerve pain, I also have a spinal stimulator which has now been in for 2 years, it has cut the pain down to allow me to get some sleep at night, as time goes by the other side is starting to have problems, this is because of buildup of scar tissue and bony growths, further operations are ruled out because of the mass of scar tissue and the surrounding nerves are all wrapped up in this.

Don

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