Your post was as if i had written it but it was strange seeing it layed out like that. Gosh we are in a mess arent we
It is so hard to make the change, we know we should, we know what to do but the energy to do it, to get through the pain to make it hurt more to make it better in the long run. It just seems impossible most days.
Hopefully one day
There is always a SMILE
in your day,
you just need to find it!
I have 70 cook books used to have dinner parties, used to,sit and read them for fun then go try stuff, used to used to used to.
I have a long list of things I used to enjoy, and instruction like you from my shrink on what to do to help get it back, but no idea where to find the energy, or the will to endure the pain I know it will cause, I,suppose all we can do is the best we can, and if that's not enough today well tuff, cause if that's all you have then that's all you have.
Just know that you are not alone and that we are here with you and for you.
“All the elements in your body were forged many, many millions of years ago, in the heart of a far away star that exploded and died. That explosion scattered those elements across the desolations of deep space. And came together to form you, you are unique in the universe.
I hope the GP can get to you or vise versa... maybe a review of the drugs might help but in any case I hope you feel better soon!
I can't say it's like your trouble but I associate part of my lack of desire for food with tramadol... seems like my stomach doesn't feel empty and hunger is so easy to ignore compared to pain... I think opiates are associated with this trouble but do we really want to continue wasting away and like already said the drugs are often better tolerated with a meal...
Again, I hope you can get some relief!
Yes, it's so hard to make that change to do what we know we have to do because when pain consumes us it's hard Ito think of anything else because we are plagued by one thought that's happening in the moment and that's Chronic PAIN!!!
Change is so hard when we are hurting so much! And it's so hard to convey that message to our loved ones because they are over it!
Well,that's what I have found with my family....my daughter-in law says well, I have spondylitis but it doesn't stop her from dancing and working...my pain is physically draining and yes, it does stop me from doing the things that I used to do...like going to the job that I LOVED SO MUCH!!!!! If I could do it I WOUlD! But my Pain exhausts me to the point that I can't work Even if II wanted too! And I really truly do want my old job back!!!
It's so much different to those who feel pain...with us our brain has changed and with that we are in pain 24/7 and it's odd and so much different to the odd ache and pain she/they might feel every now and again ( she only ever complains every few months) if you know what I mean? Mine is with me all the time and it never stops, throbbing, aching , twitching , painful crazy Pain.