I have just been to my oral specialist today and he suggested trying a Ketamine infusion for my chronic TMJ (jaw) pain.
Like a lot of others in this forum, I have super sensitivity to most medications usually falling into the pharmacist's "on rare occasions" adverse effect list.
I just wondered if anyone else had had a Ketamine infusion for their CP and if they found it to be helpful or if they experienced adverse side effects? And, if they did have side effects, are they usually sensitive to other medication side effects too?
Thanks for your help everyone. I appreciate having somewhere to go to ask questions like these because the medical profession promotes medication, but it's on a forum that you get to hear first hand people's experiences with it.
I have not had a Ketamine infusion, but I do know someone who has them every 3-4 months. She swears by them. They are administered in hospital, so any side effects can be handled on the spot. i guess it is the same as everything else. What works for one will not always work for the rest, but it might be worth a try.
Not every day is a good day, but there is good in every day.
"“It’s delightful when your imaginations come true, isn’t it?” ― L.M. Montgomery, Anne of Green Gables
I had a ketamine infusion a few years ago. I was in hospital for 10 days during the treatment and participated in physical rehab while I was there. Unfortunately the infusion didn't work for me, it had no effect on me what so ever and so it was back to the drawing board for my pain management specialist and me at the time.
Hopefully there is someone about the forum who has had a positive experience with the infusion, so they can share their story with you.
May there always be love in your heart and sunshine in your soul <3
I have had several ketamine infusions for very severe Complex Regional Pain Syndrome - trying to organise another at the moment as it happens. I have marginal success with them - I get slight to moderate pain reduction during the treatment, but no lasting relief. However, when my pain on a daily basis averages around a 7-8/10, and lately has been spiking to blackout levels, a drop to 5/10 pain for a week is a major holiday!!
I suspect I would have better success if I could tolerate the ketamine better...my pain specialist can only run my infusions at maybe 1/3 to 1/2 the max rates he runs his other patients at or I start experiencing major adverse effects. Primarily nausea and vomiting - I also have IV or IM zofran while I'm on the infusions - but even on very low doses I also get so dizzy I have to be helped to the toilet and shower. I've had hallucinations thrown in for good measure too. Some pleasant - I end up seeing coloured lights as I listen to music, for example, but some terrifying. I've had the walls 'melt' around me. My last infusion I was also found hiding under my blanket in tears, with barely any idea of who or where I was. And yes - I'm one who tends to come up with the reactions that nobody has ever seen before.
That said - Ketamine is commonly done for CRPS and I know a lot of people who've had successful infusions with no more side effects than feeling a little drunk.
Thank you Laura for sharing your experience with me.
I see that you are new to the group so a great big warm welcome
My oral specialist had some pain gel made up for me at the compound pharmacy and the pharmacist said I could apply it internally or externally. I have TMJ (jaw) injury amongst the rest of my CP symptoms. I tried it inside my mouth because all the nerves inside are hypersensed too and, as it absorbed into my blood stream, I started feeling really weird and haad a personality change which my husband really noticed. I only used it a couple of times because it made me feel too weird.
I only thought to look at the ingredients yesterday and, ha! it's got Ketamine in it!
I really appreciate you telling me about your reactions because the doctors keep pushing for trying new medications saying maybe this one will be different. It's hard not to buy into their enthusiasm because there's still a tiny glimmer of hope left, but, sure as eggs, I end up with the really rare side effects.
the hallucinogenic effects of ketamine are well known! it is an anaesthetic agent that is still used but not that often, mainly because of these effects- i remember they used to use it with kids quite often years ago but we used to have to keep the recovery room quiet to avoid over stimulating the kids while they were coming out from the anaesthetic to reduce the chances of hallucinations and confusion.
I have had ketamine, and it was an unsettling experience -mainly because i did not feel under control of myself if that makes sense- i am one of those people who really does not like the feeling of even being a bit drunk though! but Ketamine has become a drug that is used on the streets because of the feelings it can induce in some!! If they suggested another infusion to help get things under control or to help reduce opioid doses etc, i would not say no as i would be in a safe environment and the unsettling feelings did not last long but i certainly would not like it in a medication i used at home- it might help the pain but i can't imagine functioning!!